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Posted 11/11/2013 5:20 PM (GMT 0)
I am just whining, but in the past month my hair has been falling out like crazy! My UC symptoms are pretty much gone and I should be happy with that, but I can't help feeling I have lialda to thank for my thinning hair. I used to have tons of hair and even my hairdresser commented on how this it is now.
The strange thing is that the hair loss revved up once I dropped to 3 lialda a day and cortenema every other to now every third day. Strange that since dropping these meds downy hair has fallen out even more. I have an appointment with my GP for my annual in two weeks and I am getting blood drawn/tests before I see her so we can talk about results at my appoinent. She is checking my hormones and thyroid function as well as kidney/liver, cholesterol and general blood counts. Anything else I should ask for? Thanks for listening to me whine.
Posted 11/11/2013 6:33 PM (GMT 0)
I, also, have suffered severe hair loss. My dermatologist ordered a feritin level, that could be an issue in hair loss. All in all, she said prolonged illness, stress, heredity, thyroid disease etc. may be causes.

I recently went to a seminar on female hair loss. Mostly, she talked about wig and wiglet replacements. She deals with women who have undergone chemo. But, she recommended a few things that can help the slow down hair loss: 1) eat more protein, 2) DHT blockers when DHT is a cause. she recommended using Bosley products, 3) minoxidil foam. My derm also said the foam is OK for women.

My extreme hair loss has stopped but non of it has regrown. I quit dying my hair hoping the grey will help hide my scalp.

I hope you have better luck.
Posted 11/11/2013 7:37 PM (GMT 0)
Linda: thanks for the info. I will look into these, especially once I get the results from bloodwork back. It seems silly to be upset by this, but I find losing my hair to be very depressing. I would rather be healthy without hair but I would really like to stop it from falling out!
Posted 11/11/2013 8:39 PM (GMT 0)
Are you just coming out of a bad flare? It still could be a result of the flare, and not the meds, if so.
Posted 11/11/2013 8:49 PM (GMT 0)
The only true flare I have had is my first flare- in June of this year. I am not sure it was terrible, at my worst I was going 6 times a day. I do, however, think nutrition deficits could be part of the hair loss. I had a flare up of symptoms in September when I had a terrible cold, but that was just a little bit of bleeding and mucus, I haven't had more than two BM's at day since August.
I was vegan before UC but have had to add meat and fermented dairy back into my diet when I went gluten free (I just couldn't keep any weight on). I have finally regained and maintained my normal weight now for the past 6 weeks.
Posted 11/11/2013 8:57 PM (GMT 0)
This is the place to come and talk about all things UC, momto2boys, no worries.

I lost at least one third of my hair this past summer and it's impossible to pin it down to anything specific. I've had a pretty horrid year with my UC, brought in the new year in the hospital getting a blood transfusion. I thought the hair loss was likely from all the trauma my body was going through, but now I have also found out I wasn't tolerating the medication, azathioprine. One of the possible side effects for that drug is hair loss.

My hair also went coarse and fuzzy, yuck. My hair has started to grow back now, about three months after the extreme hair loss stopped. The texture has also gone back to normal.

Also, I don't know what my ferritin levels are, but I do know I've been anemic since before I went in the hospital last Dec.

Good luck, I'm happy for you that your symptoms seem under control.
Posted 11/11/2013 10:18 PM (GMT 0)
I haven't had a problem with the Lialda but when I took pred I lost a lot of hair. :(
Posted 11/12/2013 3:32 AM (GMT 0)
I was losing hair by the gobs and I think it was a from increasing from a maintenance dose of Asacol to Asacol HD and taking it three times a day. I just switched to Apriso, which is once a day and a much smaller dose, and my hair isn't falling out as much.
Posted 11/12/2013 1:21 PM (GMT 0)
Thanks to all for your replies and support! It helps to know that I am not the only one dealing with this.
Posted 11/12/2013 10:54 PM (GMT 0)
i am dealing with it too right now but i think it's getting better. been using coconut oil as a conditioner before i wash the hair and taking biotin too
Posted 11/13/2013 12:16 AM (GMT 0)
One of my friends just told me to mix rosemary and coconut oils together and leave it on my scalp overnight every day for a week and them once a week for a month. She was having terrible hair loss postpartum, largely from severe anemia. I am going to give it a try.
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