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Ulcerative Colitis
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Posted 12/10/2013 3:29 AM (GMT 0)
Ok so here is the latest on the "Sherry trilogy". For the past 4 months, I have been not feeling myself. I've been extremely fatigued...more than the norm, achy - muscle and bone, "flu'ish" (no fever). Mind you, this has all happened in the last 4 months or so: I had my thyroid tested and ultrasound"ed". My thyroid levels are fine but I have a cyst on my thyroid. I seen a urologist because I have microscopic blood in my urine. Had an ultrasound of my bladder and kidneys as well as a cystoscopy of my bladder, all is fine. Then one day I hopped in the shower and I had some stinging tingling pain on my side (near the breast), I thought I was getting shingles because it hurt off and on thru the day (no lesions). The next day I was fine. Then a few days after that, I developed a small discoid rash on the underside of my right breast...didn't think anything of it because I am HIGHLY prone to rashes. But then I developed a discoid rash the size of a quarter on the inside of my left breast. So I was thinking Ringworm. I've been using an otc anti-fungal and even though it seems to be helping a little, it's not really getting rid of it.

Now I am wondering if all this has to do with Remicade. Perhaps even Remicade induced Lupus. I've had many symptoms of Lupus over the years and numerous blood tests, all came back negative, except one. I am not sure what it meant but I had a positive ANA once. Seen a Rheumatologist, he did more tests and everything came out negative so I don't know what to make of that.

I know, this is a lot of stuff to read and you're not doctors but is there anyone out there that has ANYTHING similar?

I know something funky is going on but I am at the point where I am tired of chasing my tail with these odd things that happen to me. If I make an appt with my doc, I am afraid she is going to think I'm a hypochondriac with all this odd stuff. And how the heck do I even bring it all up??
Posted 12/10/2013 3:41 AM (GMT 0)
I don't know Sherry. If you were checked for lupus by a rheumatologist, I'd like to believe that you don't have it but I am not sure how accurate the tests are or whether they catch every single case of Lupus. Maybe you shoudl go back to the rheumy to see if they can check again if it's been a while. You haven't been on remicade that long, if it was induced, it could have happened recently. I really hope it's not the case. I am very tired and achy but I don't have rashes. I get eczyma here and there but that's usually he worst of my "rashes". Have you tried diflucan for your rash? Could you have some kind of yeast or bacterial thing that's making you tired?
Posted 12/10/2013 3:52 AM (GMT 0)
I honestly don't know Notso. I really have NO clue what's going on with me. But perhaps I should see the Rheumy again. It's been 3 years since I've seen him - that was after my positive ANA testing. I've been on Remi for 2 years.
Posted 12/10/2013 4:35 AM (GMT 0)
Wish I could be more helpful. Reading this was like talking to my daughter...one day a rash,one day a broken vessel in her hand for no reason, then a crazy reaction to the flu shot....you UC folks are confusing! I would go back to the Rhumy. New blood work logical. Lupus unlikely,(we went through all of that testing not too long ago too), but worth a revisit.
Posted 12/10/2013 4:56 AM (GMT 0)
Yeah go get tests, at least you know what to test for or a place to start! I have the weirdest pain in my back like something is growing in there and I have no idea who to see or even what to say I want them to look for!

I also have eczema that comes and goes! Tmi but usually on me pubes of all places! What is that? That's new with UC!

My back issues really worries me!

I know how you feel!
Posted 12/10/2013 5:30 AM (GMT 0)
Sherry, I think it is yeast. If the moisturizing stuff doesnt work, try alcohol and keep the area dry. Under my breasts was my only skin reaction but every time I get pregnant and my immune system is supressed I get the rashes under and between by breasts sometimes on my upper abdomen nothing knocked it out but using a gentle loofah, dial antibacterial bar soap, and then alcohol and keeping the area dry. I tried every antifungal over the counter, essential oil, yadda yadda. I even went to a couple derms who said dove soap and cetaphil, but that always aggravated it for me. In despiration I tried the dial and alcohol. I also laundered my bras in hydrogen peroxide and grapefruit seed extract.

Post Edited (PathogenKiller) : 12/9/2013 10:33:15 PM (GMT-7)

Posted 12/10/2013 1:54 PM (GMT 0)
Remicade and the other meds we're on do lower the capabilities of our immune systems. Thus causing rashes, yeast overgrowth and other things of that nature to happen more frequently. Since I've been on 6mp and Remicade, I've had a simmering yeast overgrowth in my mouth that just won't go away: Thrush I believe. Doesn't cause me any pain or discomfort; just a persistent, light, milky color to my tongue.
Posted 12/10/2013 3:24 PM (GMT 0)
Thanks all!

Yeah DMC, that's just it. How do I even begin to ask them to look for anything if I don't know what that anything is?

Who knows....maybe it's not even related to anything. Just random occurrences.
Posted 12/10/2013 7:50 PM (GMT 0)
You've described so many of the lupus symptoms, and they say that the blood tests can vary all over the place. If you can, I'd see about getting tested for all the markers (Anti-Sm, Anti-dsDNA, ANA, CRP).
Posted 12/10/2013 7:58 PM (GMT 0)
Sherry....I doubt it's yeast, but I sure believe it's autoimmune related.

I agree that many of the symptoms you experience seem like Lupus, but they also fit into autoimmune in general.

But, I would think that the Remi would have possibly lowered the incidence of it happening....Have you ever had anything like that before ?

I agree for you to set an appointment with the Rheumy again, asap.

q
Posted 12/10/2013 8:03 PM (GMT 0)
The only thing I had prior to the Remi was the microhematuria. Everything else is new.
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