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Ulcerative Colitis
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Posted 3/1/2014 2:25 PM (GMT 0)
Hi all,

So since August, I have had upper addominal discomfort.  Lots of gurgling...started out high, like top of ribs.  After a few weeks on Prilosec (couldn't tolerate) than Zantac (gave me D), I was started on Carafate.  GI doc seems to think it was Gastritis (not confirmed by scope or anything).  Improved but not better.

Since this has been going on such a long time (still on Carafate), I made an appt with GI again to ask why it is going on so long.  He told me to stay the course as long as it is going in a good direction.  Well lately I have been having a good amt of discomfort, on and off nausea.  Than I will have a few days of pretty good.  Discomfort is now more a little above the belly button area.  GI doesn't seems to want to scope.

Currently, not really flairing...maybe a smidge but that is my norm.  2-3 solid bm's--very occasional touch of blood, but not much.  Just for fun (not) just started trying a Gluten Free diet to see what happens.  Other than that, not much has changed. I have recently switched to Metamucil Caplets from the wafers (but going very slow with this)

Last night was a bad night w/ this.  Hoping for thoughts. Does this sound like Gastritis? Input/thoughts?

Thanks!

Posted 3/1/2014 2:46 PM (GMT 0)
You've never had symptoms like that related to your UC have you? I would vote something else since you've had these same UC symptoms before and none of this higher up discomfort.

Sorry you're having all the pain, hope it gets figured out soon and gets better!
Posted 3/1/2014 2:53 PM (GMT 0)
Thanks Levi! I have never had this until August. It does seem like it is always something. How about a new problem like...I won the lottery and now I have to decide who I am going to give some money too. I'm ready for a problem like that :)

On a seperate note, I am sooo excited for you with this new thing you may be trying. Thanks for weighing in!!
B
Posted 3/1/2014 2:55 PM (GMT 0)
Your GI sounds like mine, so unimpressed with my upper stomach pain. He goes as far to call it "colitis belly". However I have not had any really long periods of pain like you and mine responds pretty well to over the counter stuff.

Did they test you for h pylori? My son had it recently and the symptoms were helped by carafate, but not with regular meds like Prilosec and nexium. There is a blood test for it, but not sure of it accuracy.

Hope you get feeling better soon!
Posted 3/1/2014 3:01 PM (GMT 0)
Thanks Jane! Yes, my primary actually gave me a blood test for H Pylori and it was negative. I was relieved b/c I was very scared of how all of the antibiotics would affect my UC. Now though I wonder if that would explain the issues and I would have the chance to get rid of it.

I love how the Dr's are not impressed with our discomfort. I think they would be more concerned if it was their belly. Thanks for your input :)
B
Posted 3/1/2014 5:30 PM (GMT 0)
He doesn't want to do an upper endo? interesting....you could push for it.

What about Pariet?

q
Posted 3/1/2014 8:39 PM (GMT 0)
I know Q, I was suprised too. What is Pariet...I guess I could google it. Ugh, enough w/ this annoying stuff!
Posted 3/1/2014 10:20 PM (GMT 0)
I too would push for an endo. My gastritis causes pain (almost like a horrendous pressure on my chest, made me think at one point it was a heart attack). I also get very nauseous. Prilosec quit cutting it years ago. Then on protonix for a few years then it stopped helping. Now I'm on Aciphex but double the dose per day. I was finally given an endo last year in January. Showed gastritis but not reflux so I'm not damaging my esophagus but this is harder to treat than GERD.
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