One step closer to diagnosis

Had my follow up GI appointment today. Went over biopsy results from last scope, shows chronic non specific inflammation. GI says its very likely it's ibd, pretty much abandoned all hope of it not being ibd at this point (first scope biopsy just showed inflammation, not chronic and one biopsy spot showed ischemia). He said he's almost positive of an IBD indeterminate diagnosis and is proceeding as that's the case, but he said he won't officially diagnose until he's sure, saying its very hard to get a diagnosis retracted and it'd be on my file forever pretty much. He says he doesn't want to do that until its for sure. So, I guess that makes sense. Now, here's the interesting bit that I didn't know before. My first scope showed inflammation only in the 25cm to 50 cm section of my colon. Now, two months later when this dr did the scope it was only the first 15cm that was inflamed. He said the first dr didn't do biopsies in the first 15cm because visually it was fine and the other are was so severely inflamed. So, now, that part has healed, and it's only in the first 15cm??? Which were previously not showing inflamed...but now showing chronic inflammation two months later. Opinions on that? Also...if the first 15cm weren't showing inflammation is it possible it was microscopic in that area? Cause if not...wouldn't that mean I likely have crohns? I thought the rectum is always involved in UC. Ok, so it's involved now, but it wasn't on first scope, that's confusing.

Well thankfully he's not trying to say this is ibs. As of now my file says colitis, cause not yet determined, but suspect ibd, or something along those lines. I too am sad that the first dr didn't biopsy the rectum area, it would have been nice to know if it was microscopic. He's lowering my asacol dose and putting me on nightly suppositories again. I'm ok with that. Thanks for your response, it's reassuring to hear it could still be UC and not necessarily crohns. For some reason crohns scares me even more than UC Well, the good news is I'm responding really well to the meds. Is it normal to take so long to get diagnosis? I'm starting to think maybe it depends on the doctor. Like, would some doctors diagnose me after this biopsy of "chronic non specific colitis" ?

Thanks for your post and input, I think you're the only one interested in my post! Hee hee

I like my GI and don't feel like I'm getting the run around, which is a huge part of the battle! Lol. I think part of his reluctance is that this massive flare up (first ever) happened right after I got back from Mexico. Couple that with a clean stool test, completely normal blood work (didnt even show inflammation) and then a colonoscopy showing non chronic inflammation with ischemic injury only in the 25/50 cm area, followed by a flex sig two months later showing chronic inflammation in the 0-15cm part of my colon! It does kinda sound all over the place to me too! I totally agree with you about the whole ibs run around, what a crock!