Posted 5/2/2014 2:29 AM (GMT 0)
I saw my GI in March. We did blood work and stool samples (all normal). And also concluded that it was time to get off the prednisone b/c it was no longer helping. And I refuse to go back up to a high dosage.
My GI wants me to wait for veilizumab to be approved in hopefully the next few months. I also spoke w/ the head of research. She has a "promising trial" going to be available soon (it is a pill already approved for another condition and now can't think what).
Basically I left w/ ideas for new plans of action for the future but nothing that could immediately help me. So I have been doing my best w/ fiber, imodium and watching what I eat.
However, today my GI's assistant called and said he would like me to come into the office May 23 to "discuss something." I feel like I will be laying here all night trying to figure out what he could want to discuss!
Okay sure this makes no sense. But her message caught me off guard!