Ok, enough of this halfway flare...is it time to try something else?

Hello all:

I posted awhile back, having this sorta flare/sorta not flare deal going on. It started last Oct, I upped enemas to nightly and all was well, then I had to take an antibiotic for UTI (I kept enemas nightly and doubled probiotic) and it came back...not any worse, but not normal either.

Now...I'll have a couple "bad" days...bad for me is 4-5 BMs a day, mucus, blood. Then, I'll go a week or more with 1-2 BM, no mucus, no urgency, very little blood (I think I have a hemmie right now too). And it cycles.

I know I don't want constant inflammation...which I obviously have some...I feel like it's just at the bottom of my rectum...this flare isn't as bad as when I was dx...but I don't want it to get there.

But...I also don't feel like I'm sick enough for Pred either...I thought about the steroid enemas? The enemas seem to help more than the oral meds...though I do both as prescribed.

Thoughts anyone?

Oh, and I have done an enema in the morning sometimes too...when I have time to lay around for a little while. It seems to help....but I can't do 2 a day everyday!!

Thanks everyone for any input...I don't know what I'd do without this forum!!

It sounds like my situation. Not really bad but not in remission. I have been like that since last November. Up and down....

When did you up the oral asacol?

Are you taking fibre at this point?

I agree with considering a steroid sup or foam enema for the daytime.

You could double the UFCC or add the Reuteri to it...

q

For me, no side effects with steroid supp or Cortifoam. I do get s/e from steroid enemas as I think they are the strongest. No harm in adding them for a time IMHO.
B