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would you rather ................. ?

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Posted 5/25/2014 11:18 AM (GMT 0)
eat freaky and poop normal ......... or eat normal and poop freaky ........ ?

mostly about acceptance, but thought it might be of interest to some of you "strugglers" -

or not ?



www.inspire.com/groups/oley-foundation/journal/my-life-is-better-without-food-truly-accepting-tpn/?ref=as&asat=167700178
Posted 5/25/2014 3:07 PM (GMT 0)
I don't know. How freaky is freaky? I could deal with mush if it means I can eat tacos but urgency I can't deal with.
Posted 5/25/2014 3:30 PM (GMT 0)

soystud said...
eat freaky and poop normal ......... or eat normal and poop freaky ........ ?

I am not sure what you mean.

If I eat "freaky" and my poop comes out normal with no issues, no urgency I will assume the food I am ingesting is adequate.

If I eat "normal" and I have heavy diarrhea, then this something of concern and I need to re-evaluate what I consider normal.

oh and that article.....W.T.F.
Posted 5/25/2014 3:50 PM (GMT 0)
uh, plain engleessh :

tpn or bag ?

eat through your vein (tpn) or sh!t in a bag) ?
Posted 5/25/2014 3:58 PM (GMT 0)
How awful!....I cannot imagine not being able to eat anything..ever...poor bugger!
Posted 5/26/2014 1:09 AM (GMT 0)

soystud said...
uh, plain engleessh :

tpn or bag ?

eat through your vein (tpn) or sh!t in a bag) ?

Poop in a bag, hands down.
Posted 5/26/2014 1:47 AM (GMT 0)
I did TPN for a month. It was harsh. I craved food and was hungry all the time.
Posted 5/26/2014 2:00 AM (GMT 0)
gosh, that would suck not being able to eat. i'd probably get a bag if i knew i'd need to be on tpn forever, but her situation is very different from ours is so it's not really easy to compare. she doesn't have a choice as to whether she uses tpn. she will die without it. we do have a choice.

somedude, i didn't get what stud meant either haha wasn't very clear.
Posted 5/26/2014 2:15 AM (GMT 0)
Hi,

Was on tpn for close to a month. Don't ever want to do that again. I was not hungry. But I wanted to taste food. Feel texture chew all thats associated with eating.

Given the choice ostomy bag no question about it.

H.
Posted 5/26/2014 2:27 AM (GMT 0)

bananagirl said...


somedude, i didn't get what stud meant either haha wasn't very clear.

Oh it's normal. Soystud types stuff sometimes that makes sense in his head but comes out like some puzzling gibberish. lol


When he explained it....it still took me a while to make the connection. Eat "freaky" was a reference to TPN and poop "freaky" was a reference to a bag.
Posted 5/26/2014 2:31 AM (GMT 0)
Nope. I'm posting from a Kansas City hotel room with a belly full of BBQ. Giving up food would do me in.
Posted 5/26/2014 2:59 AM (GMT 0)
i'll make the dots bigger for you next time dud -
Posted 5/26/2014 4:01 AM (GMT 0)

soystud said...
i'll make the dots bigger for you next time dud -

see, he's at it again. ;)

j/k
Posted 5/26/2014 4:18 AM (GMT 0)
I hate cooking. And I'm not a foodie. But I love finger foods. I;d rather eat than anything. I don't care. Food or nothing.
Posted 5/26/2014 5:40 PM (GMT 0)
eat!

q
Posted 5/26/2014 6:22 PM (GMT 0)
eat freaky and poop normal - seems like a no brainer to me

I've had to forego so much weird food to manage my IBD
Posted 5/26/2014 6:38 PM (GMT 0)
"eat freaky and poop normal - seems like a no brainer to me"


ya, but, shooting up to eat ............... no flippin way - i'll poop out my ears before I give up food altogether -

my diet is marginally ( imo) challenged, but I still eat a ton of food -

tpn sucks ! a bag is a walk in the parking lot compared to tpn !
Posted 5/26/2014 6:55 PM (GMT 0)
eat poop and freaky normal

oh wait...
Posted 5/27/2014 1:27 PM (GMT 0)
Haha, I knew what he was referring to immediately.

It's a no brainer. I'd much rather the way I am now. "eat normal and poop freaky " although I don't consider it freaky, just different.. and it works and there's not enough money in this world that would persuade me to go back to my UC/pre ileostomy days (as much as I have my dream of a huge mansion overlooking the river).
Posted 5/27/2014 2:08 PM (GMT 0)
Without realizing you meant tpn... and of course not reading accompanying article... I was going to choose eating freaky. At this point i just wanna poop right!

But I dont think tpn was make me poop right. Just help me actually get nutrients for once!

As for "shootin up my food" or "$hitting in a bag" .... ill take the bag any day. Worse feeling is not being able to taste or chew. I tried a juice fast (millions of years before UC) and only lasted a day! I need to masticate!
Posted 5/28/2014 3:41 AM (GMT 0)
I'd rather eat freaky and poop normal.

I'd never opt for TPN--my UC isn't severe enough anyway--but I would seriously reduce my food intake if I could go back to 'normal' and eliminate the urgency and cramping. I went through a crazy period last year where I had some horrible and unusual symptoms of anxiety that were debilitating (feeling like someone's hand was physically around my throat 24/7, trouble swallowing and trouble expanding my lungs) and I barely ate for months. I lost about 20 pounds (especially awful because I'm already slim) and…my UC went into remission. As much as I would have welcomed UC over the physical anxiety, eating very little completely eliminated the UC symptoms and I was thankful. Even when I started on anxiety meds and I started eating properly again, I had zero symptoms for months. Unfortunately I took it as a 'I can go off my UC meds' and it soon came back.

But yeah…I hate to say it, but I'd rather eat freaky. Just not TPN freaky.
Posted 5/28/2014 12:57 PM (GMT 0)
"But yeah…I hate to say it, but I'd rather eat freaky. Just not TPN freaky."


sorry, in this poll, tpn really is your only choice :-)

ya, it's sucks to be sick, and it sucks to have to take drugs for it, but count your blessings that you can control it with the meds you are on -

it is an interesting mix of responses, between the eaters and the poopers - I'm like you, in that I don't mind limiting certain foods to stay off the drugs - some folks either don't or can't take that route -

please stay on your meds and live a long and healthy life !

Post Edited (soystud) : 5/28/2014 7:30:49 AM (GMT-6)

Posted 5/28/2014 1:04 PM (GMT 0)
I'd maybe give TPN a try as a short-term treatment, if my GI thought it was worth trying, but I'd never opt to go on it long-term instead of having a colectomy. My understanding of TPN is that it can come with a whole host of pretty serious complications. Granted, so can colectomy, but my guess is that TPN "for life" is generally more risky.
Posted 5/28/2014 1:35 PM (GMT 0)
my take fgirl:

bag = gross & inconvenient

tpn = just plain scary

tpn has been talked about a few times for our son - we always want to just run and hide !

fortunately, we're headed in the right direction, at least for now, so talk of tpn is a fading memory - we pray that it stays that way
Posted 5/28/2014 1:38 PM (GMT 0)
I'm glad that things are going pretty well with your son. Forgive me, but I forget what his challenges are -- can you share again?

But yeah, the idea of TPN scares me. I don't think a bag is really gross -- I personally think pooping my pants on a frequent basis would be more gross, assuming I had a well-functioning stoma and didn't have leaks very often.
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