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tapering pred, in pain

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Ulcerative Colitis
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Posted 5/25/2014 11:18 PM (GMT 0)
I am currently tapering off Prednisone. I'm almost done. I am so incredibly uncomfortable. My bones ache like never before. I also have slipped and herniated discs and my back hurts so bad I want to cry. I am just miserable. Any advice? I haven't had to take Pred in a while (thank goodness), but I don't remember it being this bad.

Thanks!
Posted 5/26/2014 12:02 AM (GMT 0)
What dosage were you on, for how long, and how did you taper? Sounds like you tapered too fast. The tapers usually get worse at the lower dosages. For instance, tapering from 40 down to 30 is no big deal but tapering down from 10 to 0 is a huge deal. Or, tapering from 40 to 35 is not a huge deal but tapering down from 10 to 5 or 5 to zero can be a huge deal. The longer you have been on pred the more you need to taper extremely slower on those lower dosages. You can actually get pred in 1mgs pills and taper by ones if you need to.
Posted 5/26/2014 12:57 AM (GMT 0)
I tapered from 40, to 30, 20, 10, then 5. I don't feel like it should be this bad. I feel crabbier, irritable and meaner than when I started it. I just hurt so much. I usually take:


Lialda, Prozac, Trazadone, probiotics, Mega Red Joint care
Posted 5/26/2014 1:41 PM (GMT 0)
If you haven't been on it that long overall that's a good enough taper but if you have been on pred for months and months then it may have been too fast. Everyone's body is different. It sure sounds like you tapered way too fast, for you anyway. As I said before, the prednisone withdrawyl effects are worse at the lower doses than they are at the higher doses.
Posted 5/26/2014 2:00 PM (GMT 0)
I should have indicated that I've spent a week on each dose.
Posted 5/26/2014 3:00 PM (GMT 0)
I was aching in every limb, I was not quite sure it was down to UC, or the menopause, or both, no idea, anyway I took a couple of fish oil capsules and within a week, I felt incredibly better, it might be worth trying, as really I could not quite believe the difference...
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