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bleeding but blood tests ok

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Ulcerative Colitis
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Posted 6/2/2014 11:01 AM (GMT 0)
Almost two years bleeding, at the moment I've got some bleeding with every bm, bright red blood with stools. But I feel mostly ok, 1-3 bms, blood tests perfectly fine... Any hope for my chronic bleeding? My GI doesn't seem concerned at all and that piss me off. I keep taking my meds religiously, of course. (3g oral mesalamine + 1 supp 0,5g mesalamine + foam 1g mesalamine) daily. I suppose my symptoms don't qualify to step up meds but I don't know what to do to improve my health. I've tried eating more and less fiber but I don't get results.
Greetings to everybody and thanks for reading!
Posted 6/2/2014 12:17 PM (GMT 0)
Some people never show elevated inflammation markers in their blood. even while there's active inflammation.

Have you tried 4g mesalamine enemas instead of the supp + foam? How about steroid enemas?
Posted 6/2/2014 12:17 PM (GMT 0)
Did they check all your iron levels? B12? What's your CRP? I would ask for a second opinion or specifically ask for those values. Friend of mine had a doctor who told her everything is fine. When she went to a clinic they finally told her she was anemic...
Posted 6/2/2014 3:55 PM (GMT 0)
Ugh, so typical of that darn stubborn rectum.  Like you, I am sort of always simmering (I don't always have blood, but I am simmering nonetheless).  Again, doesn't require a med step up but..maybe try a few new combos.  How about throwing a steroid supp in the mix in the am and the Rowasa enema at night.  Or Cortifoam and Rowasa enema...well you get the idea..trying different rectal med combos.  If I ever get the right combo, I'll let you know.  That proctitis is a real *****!  On a seperate note, I am jealous you have the Asacol Foam....wish we had that here in the US...sigh.

B

Posted 6/2/2014 4:25 PM (GMT 0)
I wouldn't let blood determine whether you are healthy or not. If you are doing pretty well overall I think you are stressing too much over this one symptom.
Posted 6/4/2014 11:07 AM (GMT 0)
I've never tried 4g mesalamine enemas, It doesn't seem logic to treat a few cm with an enema but I've found that the foam works quite well so who knows.

I think they checked my hemoglobin level and it was ok and my CRP was < 0,6 that I suppose that doesn't mean inflammation. B12 level was not checked.

Maybe I am worrying too much but I'd never thought that this proctitis could last so long.
Posted 6/4/2014 12:41 PM (GMT 0)
UC, including proctitus, is an autoimmune disease which basically means your own body's immune system will attack parts of your colon FOREVER. It never stops but you can beat it back with meds. If the meds aren't 100% good enough to win the battle then the attack will always be taking place, sometimes at a low level.
Posted 6/4/2014 12:56 PM (GMT 0)
I thought you cured your first autoimmune disease gary ?

so why is it uc, or any other autoimmune disease can't be cured ?

I'm still confused by that shocked
Posted 6/4/2014 1:12 PM (GMT 0)
He probably wont be. I was so anemic I had visual artifacts and he refused iron infusions. After a car accident I got the hospital to give me 4 and of course it eliminated the problem. I never went back to him.
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