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Question about flare

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Ulcerative Colitis
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Posted 7/9/2014 12:54 AM (GMT 0)
So I have been reading alot on healingwell lately. Dont post often. But I have a serious question. I see where alot of people say during their flare they have 2 to 5 bm's daily. My question is, during a flare I have 15 to 25 bms a day. And when im not in a flare (well at least I think im not), I still go like 5 to 8 times daily. Is there more to my uc than just uc? Also my current flare, I had blood work done 2 weeks ago and my hemoglobin was a 13.8. 2 weeks later im at 10. How bad is that?
Posted 7/9/2014 1:02 AM (GMT 0)
Everyone's different. Were you going 5-8 times per day before you developed problems?

The quick drop in blood iron seems pretty outrageous. One would assume that you had a big bleed to make that happen. Once upon a time I donated a pint of blood and my hemoglobin went from 10.9 down to 6. That was exciting.
Posted 7/9/2014 1:12 AM (GMT 0)
5-8 is pretty high for remission or "normal" people. Could have something to do with IBS (dont know much about it myself), so you may want to bring that up with your GI
Posted 7/9/2014 1:13 AM (GMT 0)
No. Before I normally would go twice a day depending on what I ate. And along with the drop I also dropped 11 pounds. Im assuming all from using the bathroom so much
Posted 7/9/2014 1:19 AM (GMT 0)
So remission would be you getting back to that once or twice a day thing. The word "flare" can cover everything other than remission.
Posted 7/9/2014 2:11 AM (GMT 0)
You're flaring if you are going 5 times per day. You're flaring if you're going 25 times per day. Obviously one flare would be worse than the other. I've been in a constant flare since being diagnosed 4 years ago even though I am currently only going 2-3 times per day. Other than that I'm doing pretty darn well. If you aren't totally normal then you're flaring. I remember when I first joined HW I actually thought about posting asking the question, What is a flare? Everyone seemed to be posting, "while I'm flaring" and I never knew, not even to this day, what not flaring was.
Posted 7/9/2014 2:30 AM (GMT 0)
i'd say anything above 5 times a day, you are flaring. my worst was 30x a day but now i go 0-3x a day. depends if i take magnesium citrate or not.

if you are on remicade and going up to 8x a day and are dropping hemoglobin that fast, i'd say it's not working and you need to try something else. inflammation is still simmering in your body right now and you wanna get that taken care of before it gets out of control.
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