Posted 7/14/2014 1:20 AM (GMT 0)
I'm currently about 6 months into my Remicade treatment, with somewhat moderate results. My dosage was increased in early May, but I ended up with c. diff not that long after that, which caused me quite a setback. I just had my 2nd Remicade infusion with the increased dosage, so I'm hoping to see more progress.
When I posted my intro post here a few weeks ago shortly after my c.diff was finally resolved, there was a suggestion about probiotics. I had planned to discuss this with my GI doc at my next appt. Just prior to that appt, while getting my Remicade dose (7/3) the member of the GI team covering the infusion room spoke to me about Florastor. When I spoke to my GI doc a couple of days ago, I mentioned that to him. He didn't have a real strong feeling about it, but told me it was worth a try. The recommendation from them both was if I was going to take it, to take two a day.
I had every intention of starting it this week, but find myself getting cold feet. (I was actually surprised at my reaction. I was in a store to by it, when I decided to hold off.) The thought of putting anything in my body that could make me feel bad is a bit scary. I've seen one or two people here that had bad experiences with it, but I'm guessing that's a small minority? Are the potential benefits worth it? If it does not go well, how long does it take to "leave my system"?
Thanks!