Remission update

Hi everyone,

I haven't been on here for several months...maybe you don't even remember me. Haha. But I wanted you all to know that I'm still in remission since December 2013 because of FMT, remicade, and SCD/Paleo. I think it's important for people who are in remission to let you on Healing Well know and hopefully raise your spirits a bit or give you some hope of your own.

God bless,

Hill Hunter

That's great! Just to be clear, are you still doing remicade, and SCD/Paleo? What about FMT? Do you ever keep up with it or did you just quit cold turkey? Thanks for the update.

rb--So sorry about your son. My flare was about a year exactly, and I understand the times of hopelessness. It's a wonderful support for him that you're on here!

gary--Here's my summed up story...happy to share more if you'd like.
Diet: Yes, still going strong with Paleo.
Remicade: Unfortunately, still doing that every 6 weeks. Hoping to taper, but that scares me.
FMT: I did NOT NOT NOT quit cold turkey. This was my miracle "drug" and I think the fact that it worked was because I did it so many times (and had a compatible donor). I'll bet my dad is one of the most experienced FMT prep-ers in the country. Haha, he's done probably 100. I started off every day for a month then tapered slowly to every week. Kept that for six months and now I'm doing them whenever I feel stress coming on (that's a major trigger for me). Started last August, and I'll probably never stop.

Thanks, embers and yes, I know...It's not going to be an easy decision to stop the rem if and when I decide to. I wouldn't consider it if I didn't get aches when I go to my infusions, so pluses and minuses. Conversation for the future, I suppose because I'm happy for now.

That's awesome. I keep thinking of re-visiting FMT now that my kids are a little older. My first son was in diapers when I first tried it so I don't think it had a chance to be very effective + I was in pretty bad shape at that time.