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Am I in a flare-up or not?

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Ulcerative Colitis
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Posted 1/23/2015 4:42 AM (GMT 0)
I was diagnosed with UC a year and a half ago.I was put on prednisone and asacol. I'v been in three different flare ups total. The first one I came out with prednisone instantly. The second one the prednisone wasn't as effective but still came out using a bunch of supplaments and probiotics and paleo diet in addition to prednisone. But this time, I just finished the round of prednisone, using the same supplaments and diet and I feel like Im somwhere between a flare and remission.Im excercising every day. Im in no pain, no blood, 2 to 4 bm a day, but still very sensitive to the wrong food. And very wimpy stools. I guess my question is other than the fact I hate my die (avocados, sweet potatoes, lettuce, chicken breast, well cooked veggie soup.) am I healthy. Or should I see my gi about a new treatment, which I really don't want to do. If Im not bleeding am I healing?
Posted 1/23/2015 4:52 AM (GMT 0)
there can be dangerous chronic information without bleeding. you will need to weigh the pros/cons of stronger meds. I am not sure the answer is the same for all.
Posted 1/23/2015 4:58 AM (GMT 0)
thanks.
Posted 1/23/2015 1:43 PM (GMT 0)
3 flare ups of uc within 1.5 years is terrible. You quite clearly are not on the right uc maintenance medications and have uc inflammation remaining. Contact your gastroenterologist and update your prescriptions ASAP.
Posted 1/23/2015 2:31 PM (GMT 0)
Are you still doing Asacol and at what dosage? Do you always take the same amount, or do you cut back during remission? You clearly aren't in remission right now.
Posted 1/23/2015 2:33 PM (GMT 0)

iPoop said...
3 flare ups of uc within 1.5 years is terrible. You quite clearly are not on the right uc maintenance medications and have uc inflammation remaining. Contact your gastroenterologist and update your prescriptions ASAP.


this !
Posted 1/23/2015 2:47 PM (GMT 0)
Have you ever tried mesalamine retention enemas?

At any rate, I agree you need to see your doctor.
Posted 1/23/2015 3:13 PM (GMT 0)
can we consolidate the 2 "flare or not" threads - it's making my head spin in the wrong direction !
Posted 1/23/2015 3:25 PM (GMT 0)
yes we can consolodate the two post. New at this, very sorry. To the other guy I take asacol 800 mg 6 a day along with a lot of suppliments and probiotics. So I guess it's unanimous I need a stronger treatment. Any recomendations before I see my gi.
Posted 1/23/2015 3:43 PM (GMT 0)
hey, no problemo tidy smilewinkgrin

just trying to keep my old brain from working too hard -

sorry for your challenges -

that "die" of yours sounds pretty good to me - maybe it will grow on you smilewinkgrin
Posted 1/23/2015 3:56 PM (GMT 0)

tidalbreak10 said...
yes we can consolodate the two post. New at this, very sorry. To the other guy I take asacol 800 mg 6 a day along with a lot of suppliments and probiotics. So I guess it's unanimous I need a stronger treatment. Any recomendations before I see my gi.

Recommendation = mesalamine enemas.
Posted 1/23/2015 4:03 PM (GMT 0)
Thanks there Juststud. My body really likes this diet (die, sorry) surfing better than ever and very trim...It's just that Im an alcoholic/drug addict and I've been clean and sober for 6 years. I also gave up cigs 4 years ago. All these went for obvious reasons. But then about two years ago I had to give up coffee because even a little in the morning could keep me up all night, I now drink matte. So food was my last bit of indulgence and it's taking some time to psycollogically adjust to the fact I must eat like a saint.

Thank the good lord I can still have sex. HHaaa!
Posted 1/23/2015 4:05 PM (GMT 0)
oh, and to fruit girl NO Ive never tried mesalamine enimas. Do you think that would be a good idea?
Posted 1/23/2015 4:12 PM (GMT 0)

tidalbreak10 said...
oh, and to fruit girl NO Ive never tried mesalamine enimas. Do you think that would be a good idea?

Yes. Multiple studies show that patients who use both oral and rectal mesalamine get into remission faster than those who only use oral mesalamine. And further studies show that when they're used twice weekly in conjunction with oral meds, patients stay in remission for longer.
Posted 1/23/2015 4:59 PM (GMT 0)
I second the mesalamine enemas, but if you're eating strict paleo with a little sweet potato, you might want to try some resistant starch as well, try 1/4 cup of beans/lentils a few times per week....will make a big difference in your wimpy stools. Best.
Posted 1/23/2015 7:11 PM (GMT 0)
thanks everyone, very glad I found this website.
Posted 1/25/2015 9:59 PM (GMT 0)
Hi
I have been in remission for 8 months, largely helped by mindfulness, diet, probiotics, balsalazide and twice weekly salofalk foam enemas. Sometimes I find that the odd cigarette really helps, particularly if I feel a bit stressed after work. The problem is keeping it all up and remembering that it is remission not a cure!

Off to use another salofalk!!!

Hope you don't flare again! :-)
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