ulcerative proctitis

I have been on Canasa Supp for a long time now and also Asacol HD, although I don't know why the Asacol because I don't think it does anything for the proctitis and I know it does not open and absorb. The GI said it has a little window on the side that lets the medicine escape, really? I don't think so. It looks whole to me when it passes. I am thinking the Canasa has either caused more problems than it is worth. All of a sudden I have 7 BM's a day all within 15 min of each other pain and bleeding. After 2 hours I am fine. It is grueling though. Nothing seems to help. Dr. said Mesalamine enemas, that doesn't help either. I think the Canasa is making it worse. I have stopped the Asacol and Canasa the past two weeks. BM's have slowed down to 1-2 a day, but lots of mucus in stool when I go especially right at the beginning. Also blood. Wondering if I have hemorrhoids or fissure now. Anybody tried anything from the Jini Patel Johnson book LISTEN TO YOUR GUT?
I have been trying the Natren Probiotics she recommends, but don't see any results.

I am also in a proctitis flare and the enemas make me worse! I am considering stopping them to see what happens, and taking a more natural approach.

Stopping all meds is going to backfire bigtime. If the meds you were taking aren't working or are making you worse, you need different meds. In my opinion, with proctitus you not only need rectal meds of some kind to treat that area but the oral mesalamines as well. This is because Ulcerative Colitis effects the whole colon and just because you have been diagnosed with UP doesn't mean damage is not happening farther up. It may just not be visible yet. The oral mesalamines will keep the upper part from becoming worse while the rectals fight the currently visible damage. If the Asacol was slipping through unused you need a different one. There are several brands which all dissolve in different areas.

I will say I am also on Remicade so the enemas are not my only medication. I agree with the other posters that you do need to be on some sort of meds along with good diet and exercise when you can. For me I just feel like the enemas are causing more harm than good. I am allergic to meslamine so I can't take several meds.

regatta OMG I HAVE Had the EXACT same problem!!! where the suppos used to work and now 100 percent they make it worse.. exact same symptoms after a suppos use- stomach cramping and blood and mucous. I also many times stopped the suppos and expereinced the same Increased mucous and eventually a bit a blood- i went back to my doctor to ask what to do and he gave me betnesol enemas- the steroid version for 2 weeks to wipe it out- which it did alongside doing vitamin e enemas. After coming off fthe steroid and being in remissh i decided to test out the suppos for one eve to see if maybe i would react differently this time and the enxt morning after doing it i HAD 40000000 times the amount of mucous- it was insane and horrible and since that day i have not touched those god darn suppos. i havent even gone near the enemas either sicne its the same ingredients... ive now been 2 months off any meds and i have mucous that fluctuates up and odwn day to day but so far no blood. Now reading everyones poijnts about the risk being off meds etc etc is fair but at the same time its insanity to be using meds that make you worse... whne i asked my doc about other maintenance meds apparently there isnt anything so i guess ill be med free until i get a bit of blood then ill blast it w steroids? PLEASE let me know if you figure anything out i have the exact same issue.- in regards to knowing if its hemmroids or uc i find if blood is streaked aroudn the outside its hemmies- if blood is fully on the last piece of poo that fallls out (like on the breaking point) and a feww drops of blood drip out brigth red proctitis... my doc also told me having mucous is normal.... and again i know other ppl in this feed will say blah blah your in a flare but hey, at this point ... anyways good luckkkkk i feel your pain lol

With the enemas and suppositories I had the felling I was not getting better (not getting worse but not improving).

What I did, was did not make all efforts required to keep it in for long time. Only 30 minutes, so, I did not get all the cramping that comes with the effort to keep it in. And use an other enema 5 minutes after I had let go of the first one. The second was easier to keep in and did not gave me much cramps. It might not be a solution for all. But for me it was as if the first one could not stay in.

But then again you may need to switch brand. I would not recommend quitting the rectal's meds. It took more than one year to get over this last proctitis. Many times I felt meds did not help but I stock with it. It actually worked at its best when I took the meds twice a day.

Post Edited (Chantrelle99) : 2/7/2015 8:17:54 PM (GMT-7)