Cortenema Usage

This'll be the last convo I start for a little while, I swear! I'm just new here and excited to get feedback/ideas about things I've been wondering.

So two weeks ago I started on the Cortenema nightly because I have been flaring since January. I can definitely say that i feel like 70% better than when I started. I still see blood about 2-3 times a day but it's going down in quantity, and I'm having almost normal looking BMs (sometimes) and my urgency is almost completely gone. My colon spasms have almost completely stopped too which is really exciting.

But I really thought I'd be feeling like 100% by now. So that's kind of disappointing that it doesn't feel quite right yet, I guess I just have to keep being patient.

ANYWAY so the real reason why I started this is because I asked my GI doc when I was prescribed this about how I go tapering off it. She told me that because it was topical and NOT an oral steroid, that I didn't have to worry about tapering it. But I'm confused because it sounds like several peeps on here definitely had to taper...



P.S.- I got super angry last night when I saw on the box for the cortenemas that an ingredient in them is Polysorbate-80. This emulsifier was JUST found to induce inflammation and colitis in mice. Here is the link: http://www.nature.com/news/food-preservatives-linked-to-obesity-and-gut-disease-1.16984

I would alternate the Cort enema one night and the rowasa enema the next for a week and then every third night do the Cort enema and the rowasa the other nights for two weeks or so.

You could also at this point do the cort enema at night and a rowasa in the morning. Maybe that would take care of the last of the blood you are seeing.

Agree with sherbear. Never hurts to taper any steroid. I did that after being in cortenemas for two months. i tapered to every third day, did that for a week, then stopped.

Try to get extra to keep at home. If I have a few days where things seem off, I use one to get me back on track. I've been in solid remission for a year and have used a total of 10, here and there, as needed.