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How long did it take for you to get a good uc medicine for you?

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Ulcerative Colitis
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Posted 4/23/2015 12:17 AM (GMT 0)
I got diagnosed a couple months ago and high school graduation is around the corner and my UC is still flaring. I assume this is a flare because I'm swollen, fatigued, have abdominal pain, and pencil thin stool.
Just wondering because I know I will be swollen at graduation and all that anyway.
Posted 4/23/2015 12:30 AM (GMT 0)
I did well with lialda from the beginning, but had to use hydrocortisone enemas in order to kick my first flare to the curb. Within 5 days I saw improvement and a huge change after 4 weeks of use.
Posted 4/23/2015 12:31 AM (GMT 0)
Impossible to say since its different for everyone. Im coming up on 6 years without any relief, but most tend to have success (at least initially) with 5ASAs.
Posted 4/23/2015 12:31 AM (GMT 0)
Are you taking any meds now? I've you seen your GI since you noticed those symptoms? If not, you should hurry and see him as soon as possible to get a better medicine soon. Health is always important but I can understand how it would be frustrating to be sick in such an exciting time in your life.

This is not a fun answer to hear but as for me, it's been 5 years and I'm still looking for a good medicine after 2 wonderful years on Humira. Though my friend got a medicine -Remicade, and it's working for her since 2011.

I know mostly about biologics because my flares were severe and my GI tried those right away. But maybe if your flare is not too bad your GI would try other kind of medicines, and I do not know how fast those take to kick in!

Hopefully you'll get better soon. I know it might be hard, but try to not let yourself get stressed too much even with the graduation coming and the flare. Stress has always been a huge cause of symptoms for me.
Posted 4/23/2015 12:45 AM (GMT 0)
I'm thinking my stomach ulcer thing is somehow canceling the ulcerative colitis medicine? Not sure just an idea.
I am on lialda and I have an appointment in about 3 weeks I think. I don't even know which part of the colon is infected.
I hope my symptoms will improve soon.
Posted 4/23/2015 12:50 AM (GMT 0)
Get some butt meds for sure!
Posted 4/23/2015 12:53 AM (GMT 0)
yaaa everyone is different for me im also 3 years of not being in remission blah, hoepfully the 5asa works for you! You'll normally know if a drug is working if you see progress in w week/two weeks
Posted 4/23/2015 10:27 AM (GMT 0)
When I was first diagnosed I was able to get into remission with ASA drugs, then ASA + 6mp, then I went on two different rounds of prednisone, then Remicade. Really kind of a roller coaster but the longer it went on the more chronic my condition became. Mary
Posted 4/23/2015 11:46 AM (GMT 0)
It took me almost 3 years to have a med work for me.
My signature lists them.
Entyvio is the drug that works for me now.
Have been on it for 7 months now.
Not 100%,but better for me, down to 1or 2solid BMs a day, more energy and I have gained 15Lbs . I did weigh in at 95Lbs the last year and a half.
I would to join Entyvio warriors on Facebook, invite me in turn
Posted 4/23/2015 12:47 PM (GMT 0)
I have had UC for 33 years. Diagnosed at 16, ALMOST had surgery at 17...long story, now 49 and doing ok. No surgery so far. Colonoscopies every 2 yrs. As for meds, I'm on 2400mgs of asacol a day and that's it.

I read the book wheat belly that discusses the effect of wheat on UC and Chrohns. I know I can't completely stop wheat but I decided to make a few tweaks to my diet anyway. Started eating high fiber breads and gluten free pastas. Fewer carbs, more veggies and fruit. It has helped.

So my advice to the young lady looking for a quick solution, if you haven't already, try to change your diet for a week. Keep away from as much carbs, junk food, sugars as you can and eat healthier. See if it helps. It definitely can't hurt.

Also, I tried GNC's vitamin powder.....women's ultra mega max nutrition and it kinda constipated me which at the time I was ok with! Then it leveled out but it helped to calm things down.

I've had many ups and downs with this disease but without a doubt when I am eating better, my colitis is better!

Good luck to you :-)
Posted 4/23/2015 1:07 PM (GMT 0)
Lialda is a good start. Meslamine enemas (rowasa) are recommended as well (treat from both ends). Over the counter Imodium helps with urgency.

Healing can take weeks, months, or years. It depends on how quickly you find the right combination of medications and dosages for your severity of ulcerative colitis. Some get lucky, and find their correct dose and medications early, while others struggle for longer...
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