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Gas Pains Need to Go!

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Posted 5/18/2015 12:33 AM (GMT 0)
I'm in the middle of a flare (no blood), just mucus / diarrhea and sometimes stool that is just very broken up in small small pieces. The worst though is the sudden, extremely painful gas that hits suddenly. The best way I can describe the feeling is almost like a balloon is being inflated in my rectum. It feels like my rectum is expanding rapidly and when I pass the gas, my rectum throbs horribly. The pain is terrible. I can feel it shooting up my colon. I cant get anything to stop it. suggestions? It's odd to, if I'm laying on my side and I pass the gas, if I roll on to my back or my other side, the gas instantly hits suddenly. My rectum can't take much more of this, it hurts bad
Posted 5/18/2015 1:42 AM (GMT 0)
oh yes, that old familiar feeling!

Do you have rectal meds? if yes...start them asap.

Ask the GI for antispasmodics...they do help taken up to 3 - 4 times daily through this type of episode.
Sounds limited in the rectum, which is a good thing.

Rectal meds...those friends you cannot live without.

Sucks to hear you're going through a flare. How many times a day are you going?

The other thought is....hemmies with flare.

Hang tough....
q
Posted 5/18/2015 2:01 PM (GMT 0)

quincy said...
oh yes, that old familiar feeling!

Do you have rectal meds? if yes...start them asap.

Ask the GI for antispasmodics...they do help taken up to 3 - 4 times daily through this type of episode.
Sounds limited in the rectum, which is a good thing.

Rectal meds...those friends you cannot live without.

Sucks to hear you're going through a flare. How many times a day are you going?

The other thought is....hemmies with flare.

Hang tough....
q

my problem with rectal meds (liquid) due to my shortened colon is I cant hold them in at all. I need to maybe try supposotories? I take lomotil and bentyl to try and slow it down but nothing helps. When the flare first hit I was going about 10-20 times. Now I'm going maybe about 5 times but the symptoms are the same. I do have incontinence involved with it as well. I'm going through depends like mad. I can't wipe at this point, it's too irritated. I make it to the bathtub. I do feel some swollen lumps on the outside when I wiped but they seem to go way down after my bowel movements have calmed down. I don't know if I have any internal hemmies. I need to ask my GI maybe about rectal foam? I see him on Wednesday. I'm on 40mg of prednisone now and it's not stopping the flare completely like it has in the past. :/
Posted 5/18/2015 4:20 PM (GMT 0)
Hi Gordon....I totally get how liquid retention would be difficult, but the idea of foam (which would only be steroid in the US) and/or suppositories is perfect!

Could you add fibre supplement to help with bulking the stool a bit?

Maybe try a diaper cream from the baby department in the store, or from a medical supplies store for a product that will help with the irritation from the incontinence. Cetaphil cleanser would be good to use...not soap.

I'm wondering if you might have picked up something.....a stool sample would be in order just in case.

Are you on any probiotics as well?

Hope this gets under control.....maybe a visit to your GI would be in order for him to take a look to see if anything else is going on.

Keep us updated how you're doing.
q
Posted 5/18/2015 6:44 PM (GMT 0)
I was having gas pains and a lot of flatulence as my last remaining symptoms. Last week I started using Gas X after every meal and it has made an enormous difference. Within 24 hours less pain and now I just have "normal" amounts of farting. Don't know if it would help you but I think it's pretty safe to try.
Posted 5/18/2015 7:44 PM (GMT 0)

quincy said...
Hi Gordon....I totally get how liquid retention would be difficult, but the idea of foam (which would only be steroid in the US) and/or suppositories is perfect!

Could you add fibre supplement to help with bulking the stool a bit?

Maybe try a diaper cream from the baby department in the store, or from a medical supplies store for a product that will help with the irritation from the incontinence. Cetaphil cleanser would be good to use...not soap.

I'm wondering if you might have picked up something.....a stool sample would be in order just in case.

Are you on any probiotics as well?

Hope this gets under control.....maybe a visit to your GI would be in order for him to take a look to see if anything else is going on.

Keep us updated how you're doing.
q

I do have some benefiber, I'll give that a shot and see what happens. Diaper cream is my life saver, I use desitin and it usually heals overnight. I've also been sitting on an icepack. I see my GI on Wednesday and I'll go over with him what I've been dealing with. I know he's pushing for surgery. I take Align probiotics, I think I need something maybe stronger?
Posted 5/20/2015 5:39 PM (GMT 0)
Hi..sorry for the late reply.

I think benefiber would be a good choice to try since you have it. Did you use it in the past?

Awesome to hear the Desitin is very successful for you...the icepack would be a tad cold, but I can see that it would be soothing.

Align probiotics have only one strain in them....you might want to consider another to add to it. Jamieson has multiple probiotics if you're wanting to add a few more strains to see how they do before investing a lot more $$ into more expensive ones.

How did the appointment with the GI go today?

q
Posted 5/20/2015 7:59 PM (GMT 0)

quincy said...
Hi..sorry for the late reply.

I think benefiber would be a good choice to try since you have it. Did you use it in the past?

Awesome to hear the Desitin is very successful for you...the icepack would be a tad cold, but I can see that it would be soothing.

Align probiotics have only one strain in them....you might want to consider another to add to it. Jamieson has multiple probiotics if you're wanting to add a few more strains to see how they do before investing a lot more $$ into more expensive ones.

How did the appointment with the GI go today?

q

I've tried fiber in the past but not benefiber, I haven't had much luck with fiber supplements.

The icepack isn't too bad, it's one of those "gel" ones and has a protective sleeve over it so it's not bad at all and yup it's very soothing lol.

I'll look for another probiotic and give it a shot, I'm almost out of align anyway.

I saw my GI, he's still pushing for surgery. He told me to try the canasa supposotories again and he put me on an antibiotic to try and control the horrible gas I have...it's called Xifaxan. It's clinically designed to pass the stomach and deal with the bacteria in the gut. I have two weeks of free samples since my insurance will not cover it. We'll see how it goes.
Posted 5/20/2015 11:13 PM (GMT 0)
Hope that the antibiotic helps.....what's the regimen for it? I'd suggest you take the probiotic at night when your gut is "quieter".
And take the fibre with your meals....

If you have the Canasa still...great to give them a go.
He didn't consider a stool sample test?

Keep me posted on how it goes....
q
Posted 5/21/2015 1:24 PM (GMT 0)

quincy said...
Hope that the antibiotic helps.....what's the regimen for it? I'd suggest you take the probiotic at night when your gut is "quieter".
And take the fibre with your meals....

If you have the Canasa still...great to give them a go.
He didn't consider a stool sample test?

Keep me posted on how it goes....
q

I take the antibiotic twice a day for 14 days. I try to take one in the morning and one at night before bed. We have done so many stool tests recently it's not even funny lol. I'm tired of filling those little vials but I've become a champ at it lol. I had one the previous time I saw him about 3 weeks ago. He's always concerned about C-Diff as I've had it before in the past
Posted 5/21/2015 5:38 PM (GMT 0)
Yeah...those little scoops with diarrhea...ugh!

Did you ask the doc about probiotics?
q
Posted 5/21/2015 6:47 PM (GMT 0)

quincy said...
Yeah...those little scoops with diarrhea...ugh!

Did you ask the doc about probiotics?
q

He's a big supporter of them, his office "promotes" align and thats why I was taking that one to begin with. He did give me some samples of VSL. I should probably just go to my local health food store and see what's available locally here.
Posted 5/24/2015 3:26 PM (GMT 0)
maybe the VSL will be of help. I've never tried it, so have no feedback. If you do get something from your health food store, make sure they're enteric coated.

Keep me posted how you're doing.

q
Posted 5/26/2015 1:33 AM (GMT 0)
OMG, my gas is like rotten eggs and it's still constant, whew they are bad bad bad
Posted 5/27/2015 2:36 AM (GMT 0)
ugh....Is that since taking the antibiotic?

q
Posted 5/27/2015 4:25 PM (GMT 0)
I think the smell has gotten considerably worse. I've stopped the antibiotic on my own and I think the gas hasn't gotten any better and that's what it was meant to treat. I have been overloading with probiotics so I'm hoping I'll see an improvement as the days go on
Posted 5/27/2015 5:56 PM (GMT 0)
I think that the first thing is to do another stool sample testing done.

Are you still using rectal meds?

Are you trying the fibre?

An lastly....How often are you having bms?

Oh...lol...any change in food intake?

q
Posted 5/27/2015 8:28 PM (GMT 0)

quincy said...
I think that the first thing is to do another stool sample testing done.

Are you still using rectal meds?

Are you trying the fibre?

An lastly....How often are you having bms?

Oh...lol...any change in food intake?

q

I'm trying the suppositories (canasa). I haven't had the bad rectal throbbing / tail bone pain in a few days.

I haven't seen any change with the fibre yet.

I'm probably going anywhere from 4-8 times. When I go I don't pass a whole lot, it's very soft but not watery. My "raw" butt has also calmed down. I still have the occasional issue of not being able to control my BM, I just had an accident before typing this. The gas is still coming on hard and fast.

My diet has been the same, nothing is new at all. I'm about ready to strip down my diet to strictly liquids for a couple days to see what happens. I hate it but I'm curious if anything changes.

I found more probiotics I had forgotten about here at home. I'm going to use them up before buying more, they contain:

Bifidobacterium Infantis: 10mg
Bifidobacterium Infantis Strain: SD 5845
B Lactis, B Longum, B Bifidum: 15mg
Total Active Probiotic Cells: 5 Billion
Gradual Release Capsule
Posted 5/28/2015 3:21 PM (GMT 0)
Great to hear the Canasa is helping with the throbbing...for sure continue with them. Hard to hear you've had a few accidents....the gas is certainly a great driving force for them to happen. Impossible to hold in loose stool.

Possibly try another fibre such as Metamucil?...but add it with "meals". What were you eating in general? What would you constitute liquids? With liquids, will be more liquid bms, but it'll slow down the transit time possibly. The Metamucil (I'd suggest capsules in either brand name or generic) will help to help sweep out possible intruders and bulk up the stool without your having to go have your digestive tract dealing with the food digestive process (so to say).

Take the probiotics only at night on an empty stomach about an hour or so after your meds. Since it's gradual release, it would be enteric coated I think. What brand?

Keep me posted how the day goes....I would still suggest a stool sample if things don't improve.

q
Posted 5/28/2015 4:52 PM (GMT 0)

quincy said...
Great to hear the Canasa is helping with the throbbing...for sure continue with them. Hard to hear you've had a few accidents....the gas is certainly a great driving force for them to happen. Impossible to hold in loose stool.

Possibly try another fibre such as Metamucil?...but add it with "meals". What were you eating in general? What would you constitute liquids? With liquids, will be more liquid bms, but it'll slow down the transit time possibly. The Metamucil (I'd suggest capsules in either brand name or generic) will help to help sweep out possible intruders and bulk up the stool without your having to go have your digestive tract dealing with the food digestive process (so to say).

Take the probiotics only at night on an empty stomach about an hour or so after your meds. Since it's gradual release, it would be enteric coated I think. What brand?

Keep me posted how the day goes....I would still suggest a stool sample if things don't improve.

q

definitely when the gas hits, I don't know if it's gas or a bathroom accident waiting to happen, I really can't tell them apart.

I'm going to get some metamucil today, the capsules work better then the stuff you mix with water?

The probiotic was just a local grocery store brand. I did pick up some "Digestive Advantage Gas Defense" and will see how that goes now.

I don't eat anything really out of the ordinary, I've never had food issues in all my years with the disease. I've tried multiple diets with no real improvements over time. For liquids, just your basic colonoscopy type foods, the stuff my doc always gives me in the hospital. My thinking is it may help settle my bowels a bit
Posted 5/29/2015 6:20 PM (GMT 0)
I never chance passing probable gas during a flare, lol. If there's stool or mucus or whatever sitting in the rectum, that will for sure come out with it, ugh!

The Metamucil that you mix with water might be better for you, just don't get the one that's sugar-free.
The smooth might work well for you....I did use it many years ago for diarrhea and it was perfect. The orange flavour was what I got, and as per my doc's instructions...I mixed it in a half glass of water and didn't take a full glass of water afterward. It worked fairly quickly.....a good start for using fibre.

I use the capsules because I take them just after I eat with water. I have no desire to have an orange drink. I also carry them with me since I do go out for supper and would prefer to have them with me.

All you can do is start with something and go from there. The smooth Metamucil is a good start, and if you find it successful...once you get more stable, you can stick with that or eventually change to the capsules.

Keep me posted.
q
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