Posted 5/30/2015 6:00 PM (GMT 0)
My doctor has prescribed Entocort as a last ditch resort to avoid Imuran. It works pretty well when it comes to resolving my GI symptoms except urgency, but the side effects are even worse than what I experienced on prednisone. In addition to the moon face and increased appetite that I always get from steroids, I now have acne, severe fatigue and joint pain, and constant headaches. I tried taking 3 mg instead of the prescribed 6 mg, but that dose doesn't help the UC symptoms. I put a call into my doctor's office a few days ago, but it's not unusual for it to be a week or longer before he gets back to me.
Does anyone have any tips to help with the Entocort side effects?
I have left-side UC, good colonoscopies but terrible symptoms. Also rapid gastric emptying and a rare genetic disease. Have lost half of my bladder and a kidney so far.
Currently taking: Entocort, Colazol, Canasa, B12 shots, Zofran and Klonopin as needed.
Have tried: All of the 5-ASAs (none work), Canasa and hydrocortisone suppositories, Flagyl and Cipro, Prednisone (somewhat effective until I drop below 20 mg), and Uceris (didn't work at all).
I have a genetic disease that predisposes me to cancer, which is why my doctor is nervous about prescribing Imuran.