Extreme fatigue / Pred enema

I have been having a flare for about 8 months. My Doc prescribed pred enemas, which I have never been on before. I have been on a 4 week course of oral steroids during this flare but I HATED them - couldn't sleep and was back where I started as soon as I stopped.

So...the enemas were helping, I did a 2 week course and then another week. As soon as I stop I am back where I started with symptoms. My Doc told me not to worry about tapering use as enemas are not absorbed in the same way as oral steroids...However I stopped a few weeks ago and since then I have been so so tired.

I have been exhausted constantly, no amount of sleep or rest alleviates this feeling of tiredness. I find the thought of doing pretty much anything stressful and cannot motivate myself to do anything outside of work. The thought sometimes of lifting my arm, shifting my position on the sofa, these things, is a struggle. I'm physically too tired. I am OK in the morning in work and until about midday. Then I start to feel tired and by about two my head is fuzzy, I can't concentrate and I am making mistakes.

I have been wondering why, why am I so tired all the time? And then I wondered if it has anything to do with abruptly stopping the steroid enemas. I googled and this seems to be a thing....I was wondering though what people have experienced...

Thank you :)

Ellie

Like already mentioned, it is hard to know if it is the UC flare or the pred that is causing the fatigue. It could be both.

Pred enemas always caused extreme fatigue with me and always made my bleeding worse. They do seem to work for a lot of people though to control a flare when it is in the rectum. Have you tried the mesalamine enemas? Those work like a charm for me (when I can keep them in).

I also found that doing my best to get some exercise even if it is just a walk to the end of the street and back helped with the fatigue. I know it is probably really hard right now but it may help. Sometimes I think the more sedentary you are, the worse the fatigue gets.