Primary sclerosing cholangitis

so to make this short I got diagnosed with pancolitis last December and my liver enzymes were messed up at the time and now I'm hearing i might have a liver disease and i have a suspicion that it would be Primary sclerosing cholangitis and im 15 could you guys give me some info and advice about my situation please. :)


15 years old
Pancolitis as of december 22 2014
Imuran 60 mg
Recently of uriodiol

Post Edited (APpPles) : 8/10/2015 5:37:45 PM (GMT-6)

Self diagnosis is usually wrong. I'd get some tests done and see what's going on. You're on Imuran, are you getting regular blood work? Specifically the Liver Function Panel (Hepatic Function)?

I'm a horrible typer, small smartphone screen and fat fingers are a bad mix lol. No reason to apologize for a typo.

You said that you are hearing that you may have PSC. What test(s) did you have and/or results were discussed with you to lead you to believe that? I am not trying to pry into your personal life, but don't want you to jump to conclusions about your health. As iPoop said, self-diagnosis can be a bad idea.

If you have been officially diagnosed with it, there are many good sources of information out there other than internet forums. :)

I have PSC, and I know it's easy to become freaked out and scared when you start reading about it.

If you are concerned, present t it to your doc. If you are to have any testing, opt for noninvasive MRCP.

There are many reasons for increased LFTs...who did you hear from that stated you might have liver disease?

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