Can't achieve remission:

Sorry - but 80 percent of COPD deaths are smoking related. I'm not bashing smokers - yes everyone's choice. A ridiculous choice in my opinion... And different opinions do not mean bashing someone else's.

Post Edited (Duffle) : 8/31/2015 2:44:35 PM (GMT-6)

Fully agree that we're all going to die anyway so may as well just do the best we can and enjoy ourselves while we're at it pb4, but I don't think we can apply that to smoking. You are not just harming yourself when you smoke, you are harming the environment and everyone around you - second-hand smoke is a real killer and it's irresponsible to tout the 'my body my choice' mantra in a situation like that.

And fine, you MAY not get lung cancer, but you will definitely become weaker, decrease your lung capacity, physical fitness, ruin your teeth and spend a lotttt of money on the vile habit.

I was one of those few who got cancer from 6MP and Remicade. I took Asacol immediately after diagnosis. However, I had a reaction to it that actually made me worse, more bms and more blood. I went undiagnosed for 10 years. A colorectal surgeon who was going to do hemorrhoid surgery found that I had no hemorrhoids, but did have IBD. Two years later my colon was shot and had to have a proctocolectomy with end ileostomy. I was never in remission. Along with Pred during that period I had iron infusions. One of my daughters was on high doses of Pred for 12 years due to UC. It has wreaked havoc on her body. She suffers with arthritis throughout her body. She had a colectomy w/j-pouch. She was never in remission either. She did the enemas and drank gallons of aloe vera, took Asacol, Pentasa and Remicade. Her surgery was 12 years ago and she is doing well and has had two children since her surgery.

For those still dealing with UC, I would say, do your homework. It's fine to listen to your doctors, but I wish I had insisted, during that 10 years of not being diagnosed, that I see a GI who would get to the bottom (no pun intended) of my issues. Perhaps I would not have gotten to the 25 bms a day with gushing blood. The colorectal surgeon who finally diagnosed me said he had patients on Cumadin who didn't bleed like I was. Please stand up for yourself and don't be afraid to find another doctor if yours will not listen to you.

On the positive note, my cancer was confined to the colon and I did not have to have chemo or radiation. Five years after surgery, I have no regrets for my surgery.

gospelady said...
I was one of those few who got cancer from 6MP and Remicade. I took Asacol immediately after diagnosis. However, I had a reaction to it that actually made me worse, more bms and more blood. I went undiagnosed for 10 years. A colorectal surgeon who was going to do hemorrhoid surgery found that I had no hemorrhoids, but did have IBD. Two years later my colon was shot and had to have a proctocolectomy with end ileostomy. I was never in remission. Along with Pred during that period I had iron infusions. One of my daughters was on high doses of Pred for 12 years due to UC. It has wreaked havoc on her body. She suffers with arthritis throughout her body. She had a colectomy w/j-pouch. She was never in remission either. She did the enemas and drank gallons of aloe vera, took Asacol, Pentasa and Remicade. Her surgery was 12 years ago and she is doing well and has had two children since her surgery.

For those still dealing with UC, I would say, do your homework. It's fine to listen to your doctors, but I wish I had insisted, during that 10 years of not being diagnosed, that I see a GI who would get to the bottom (no pun intended) of my issues. Perhaps I would not have gotten to the 25 bms a day with gushing blood. The colorectal surgeon who finally diagnosed me said he had patients on Cumadin who didn't bleed like I was. Please stand up for yourself and don't be afraid to find another doctor if yours will not listen to you.

On the positive note, my cancer was confined to the colon and I did not have to have chemo or radiation. Five years after surgery, I have no regrets for my surgery.

But the cancer caused by remicade/6mp is called HSTCL. Tcell Lymphoma. You probably got colon cancer from either genetics or having IBD (increases risk, especially if you're not in remission for years on end).

I had surgery too and I am able to get out and do whatever i want now, it's great.

One more thing - it's better off it was CC and not HSTCL because, from my shoddy research on the topic, it's pretty aggressive (and that's a nice way to put it).

I found relief in only smoking a few (it was either 5 or 6 per day way back then) but I increased over time back to regular for me smoking. There are risks of course but that can be said for just about anything, I get that people are totally against smoking and that is ok, I just find it odd that everyone always throws the cancer scare out there in regards to smoking when there are plenty of other things (including IBD meds) that can also cause it. It is helpful for me in regards to my gut and I also do enjoy smoking so I see it as a win-win lol, I am not scared of getting cancer (for one my crohnès colitis for 23 yrs straight hasnèt given me cancer yet, I know it still can but it hasnèt yet) and secondly if it does, it does, thatès life I guess, just the way I see it....donèt mind the è something is messed up with my keyboard causing my apostrophyès and question mark are coming out like this é and donèt know how to fix it lol!

Well gospelady was affected with cancer so it definitely happens. We're all gonna get something that will take us out, I enjoy smoking, been doing it for 34 yrs basically (quitting a few times over the decades but still smoked more than not) it's one of the few things I enjoy. I am lean and quite fit for my age (48) anything can happen, that's just the way life is. Neither of my parents smoked, Dad died of Leukemia and mom from a brain aneurysm, older brother was a chain smoker for decades, quit smoking for 25 yrs got throat cancer detected in stage 4, recovered and has been cancer free for 7 yrs now, 3 other older sisters still smoke, so far all are "healthy" still, one other older sister that never smoked or drank just found out she has kidney disease...so that's my close family health history...none of them were active in any physical way, everyone is more on the lean side as in no one is over weight or worse, obese and 5 out of 6 are smokers (with the exception of my brother that quit 25 years before getting throat cancer, he remains a non-smoker as he was for 25 yrs and later got throat cancer.

I can portray IBD meds the way they are portrayed, they have potential to cause cancer as well, whether you like it or not, it's a fact. many things can cause cancer, anyone can get cancer, you clearly missed the point of that.

You're focusing on the higher risk factor, I'm saying MANY things can cause cancer, as if I don't know smoking has a higher risk NCOT, that's not what I was pointing out, I for one don't care what has a higher risk or not, point is the potential for cancer is out there in all kinds of forms and anyone is at risk regardless if they smoke or not, pretty sure we all know smoking can cause a higher risk but I wasn't pointing out what causes a higher risk, you turned it into that, never once did I say meds had a higher risk than smoking so don't make it come across like I did.

You're not telling me anything I don't already know. Again, lots of things *can* cause cancer, lots of people smoke decades upon decades and don't get cancer. Done discussing this, it's going nowhere.

i'd recommend you cooking very substantial bone broth and drinking it many times a day, hope you'll be OK soon :)

Maybe smoke some bone broth ? Or just inhale the fumes ?