Constant cramping pains although no inflamation. Why??

I have been having constant crampig pains ever sunce i was diagnosed a year ago. The consultants said i no longer have inflamation and he keeps saying theres nothing he can do and to go to the dietician.

I have gone onto a gluten,wheat, dairy and loads of other thigs free diet and i still get horrific cramps, wake up 3 times a night and get menopausal sweats of hot and cold along with chronic fatigue and as i said crippling cramps and pains.

Id this normal? Is this jusy how i sill be everyday for the rest of my life? I cant kmagine it is. Someone please give me some real advice i feel completely let down by the doctors snd the system. I feel like they think im being over the top and complaining as if ive got a papercut when really ive sliced my hand open!!

I am at my whits end here, advice greatly needed!

What tests did they run to confirm no inflammation?

What was your diagnosis? What medications are you on and have been on?

Hi katie, I'm so sorry to hear this. I'm going to echo pb4 I also had cramping and hot flashes. Ironically, I was diagnosed with severe endometriosis and severe uc all in the same year.

My endo caused cramping in lower left area which mimics left side colitis. A vaginal ultrasound showed ovarian cysts. I also had monthly nausea and diarrhea that coincided with my ovulation ( other have it during menstruation) that was not uc related. It was always short lived for only a few hours and never had blood or mucous. It had a lot to do with hormone fluctuation.

Where is your pain?

I had a full hysterectomy and they removed a lot of scar tissue. My cramping ended.

Now I'm in a uc flare and the only cramping I have is right at the time of urgency.

Find an obgyn that specializes in endometriosis and also understands the connection between ibs/ibd and uc. It took me 2-3 drs but I found one!

My other advice is make sure it isn't gas pain. I suffered for years with upper belly pain and found when I eliminated red pepper (paprika, chili, bell, etc) the pain went away. I'm not saying yours is the same but many times we have weird trigger foods that we would never imagine. Red peppers happen to be mine.

Best of luck and hang in there. A year ago I was at wits end and had 11 months of no pain, no flares and a happy, normal life. Granted it was short lived but I'm starting the clock over and hoping next time remission sticks.

Thanks for the replies! Ive had a baby just before the diagnosis and a smear test a few months ago and nothing strange there. Ibe had a cyst before and its nothung like that feeling. Its more like labour pains. All over my stomach from ynder my ribs right down to below the pants line and the lower back too.
Ive had an endoscopy, ct scan and mri scan along with blood tests all saying no inflammation.
Theyve told me i had ibs alongside uc. But i had ibs before ibd and i never had the cramping pains.
The pains can come while im passing stools, when ive just eaten, when im just sitting down or walking or basically at any interval when im not hungry, havent eaten recently enough for it to be a trigger food or theres nothing i can even imagine is starting it!
Id say about once a month i will be walking and have a stabbing, crippling pain on my left side bowel too. Does anyone else get this? Perhaps even more often

The pains you describe sound like my endo pain but I'm sure it can be explained by any number of things as well. Just throwing it out there as an option. Endometrisios doesn't show up in tests. It can only be found in surgery unfortunately. But a good obgyn can pinpoint symptoms much like ibs. And it is often connected with ibs in women.

Also for pain relief try castor oil heating pads. I love them. There are kits at whole food and online. You just wrap up in castor oil and flannel and apply a heating pad.

If they have not don't biopsies it's possible there is microscopic inflammation that is causing you pain and cramping

Is it spasms from irritable bowl? They're painful. If so, id ask for an antispasmatic...

Although it didn't help me, my doctor told me that lots of people have luck with nortriptylene. It was designed to be an antidepressant, but ended up being more effective in a lower dose as an antispasmodic. When I was on it, I experienced no negative side effects other than sleepiness (I took it at night before bed), and found that it helped with my insomnia.
Most people tolerate it well.