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Ulcerative Colitis
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Posted 10/20/2015 10:58 PM (GMT 0)
I've had four accidents in the past two, maybe three months. The first was a slight dribble while in bed one night. The second was in my place of worship. These two didn't bother me too much because it was small, easily cleaned up, and it seemed to stop after that. These last two; however, were in school, the last place I needed them to be. The one I had just to weeks ago was messy and I ended up walking out with pants or underwear, covered only by the robe I chose to bring that day. The most recent was earlier today. In the middle of fourth period I ran to the bathroom in hopes that I could make it, with no success. I cleaned everything to the best I could and called home sick.

Any advice on how to handle a school situation like this?

Thanks in advance!
Posted 10/20/2015 11:27 PM (GMT 0)
That sucks!!!! But since you are in school you are lucky because you can always have your backpack with you and a change of clothes. Just freshen up and tell anyone who asks you spilt something sticky!

Are you on meds? So sorry you are dealing with this at this age! :-(
Posted 10/20/2015 11:30 PM (GMT 0)
How horrible, sorry you have to go through this. I've had my unfair share of accidents, as well, so I get it. The first, and most important thing is to contact your gastero intestinal specialist and change your treatment around. Because clearly something isn't working if you're having accidents. You're uc might be flaring and that'll require changes.

Speak to your school guidance counselor and make sure the teachers know you have a medical disorder that might require you to leave class quickly to use the bathroom, need special accommodation for tests, etc.

Ask your doctor about using an anti diarrhea medication like Imodium.
Posted 10/20/2015 11:34 PM (GMT 0)
You need to get the flare up under control so you can relieve the urgency that is causing accidents. I am so sorry, i can't imagine how difficult it must be, especially since kids can be so mean. Have you told your parents what is going on? Do you see a GI doctor? What medication have you tried?

Once I had an accident of sorts at work. I had to throw out my underwear. It was the worst. It happens to all of us. shakehead
Posted 10/20/2015 11:52 PM (GMT 0)
When I was having a bad day and could not stay home from work, I wore plastic underpants and brought a change of clothes. I also used half an Imodium tablet.

Post Edited (DBwithUC) : 10/20/2015 6:38:28 PM (GMT-6)

Posted 10/21/2015 12:26 AM (GMT 0)
DMC2011,
I am on medication.

notsosicklygirl,
My mom is aware of my accidents and tries to help the most she can.
I started seeing a GI back in May when I was first showing symptoms for UC.
I am currently on Flagyl, Imuran, and Prilosec. These are the only ones we've tried so far.

Thanks again for the help!
Posted 10/21/2015 12:42 AM (GMT 0)
Imuran takes a while to kick in. Have you been tested to see if you are at therapeutic dose? Did yall discuss mesalamines? They are often 1st line drug. Priolosec is stomach and esophagus. Do you have other problems?

Flagyl is an antibiotic used less often, unless there is concern about c-diff. It can be tricky because antibiotics can make UC worse.
Posted 10/21/2015 1:00 AM (GMT 0)
Thank u! You should look at diff meds!
Posted 10/21/2015 1:16 AM (GMT 0)
Accidents are horrible. The best thing to use for urgency is rectal meds. Have you discussed using either a suppository or enema with your GI?
Posted 10/21/2015 1:18 AM (GMT 0)
DBwithUC,
My doctors are saying the imuran hasn't had time to get an accurate test result yet.
What are mesalamines? Would you recommend them?
The only other problem is that the doctors still aren't sure if I have UC or Crohn's.
Posted 10/21/2015 1:20 AM (GMT 0)
RockerGirl,
What are suppositories and enemas?

Thanks!
Posted 10/21/2015 5:41 AM (GMT 0)
Suppositories are bullet shaped and you put then in you butt. They are painless and melt away, they are usually called canasta.

Enema are in a bottle with a nozel and you insert the liquid into your butt and it too is painless. Some times a little harder to retain.

You do these at night or in the morn or both. You need to look for not these! Great medicine and way less scarey then imuran!
Posted 10/21/2015 5:01 PM (GMT 0)
I wear depends when I need. While you cannot sit in your poop you still have time to get to the bathroom to change. To hide them I wear control top panties ( Dkny makes them).

Mesalamines are generally the first line of drugs used for ibd. They usually have no side effects and most people can tolerate them very well they also have very little risks associated with using them. As others have mentioned you can use both oral or rectal types and both are good. The oral ones are in a special coating that releases them when it gets to your bowel.
The major difference between different oral is the coating and where exactly it's released.
I'm not sure why your GI did not put you on those first. I would ask them ASAP. If they are not experienced in ibd than I would advise looking for one who is.
Is your blood being monitored while on imuran?
Have you been tested for pathogens. ( C. diff made me have a lot of accidents)
Get as much information on ibd as possible.
How were you diagnosed? Did they scope your small intestine or do an upper endoscopy or pill cam to help determine if it's Uc or cd?
Posted 10/22/2015 6:15 PM (GMT 0)
I do the same as Dikid. Wear depends layered under other clothes so that others can't tell you're wearing them. They have a type called Silhouette which looks a little more like regular underwear. I recommend dark skirts.

Avoid wearing dresses, tight pants, light-color bottoms. Carry a change of clothes and items like wipes and plastic bags in a large purse. Keeping a sweatshirt or sweater that you can tie around your waist can be helpful too, in a pinch.

But more importantly, like everyone else said, start doing your own research and talking to your doctor about medications.
Posted 10/23/2015 2:28 AM (GMT 0)
I'm so sorry that happened to you.
Ive been there numerous times. :( This disease we have is so terrible.
My prayers are with you tonight High School Girl

If you have UC I've found Uceris to be highly effective in controlling my inflammation
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