HealingWell
Search Close Search
☰

Bye-bye prednisone

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 12/27/2015 1:06 PM (GMT 0)
I just took what is hopefully my last dose of prednisone, 1 mg for the past week, to treat this flare. Fingers crossed everything remains stable. I still taking 4 lialda a day plus nightly rowasa.
In other exciting news, I just got another hideous cold from my younger son and the sinus pressure is really intense. Thankfully it hasn't impacted my UC yet.
Thanks for all your support on my first experience with such a long course of pred, it has been quite a ride and something I don't ever want to experience again!

Eta a subject
Posted 12/27/2015 2:40 PM (GMT 0)
Congratulations on getting off the pred. I hope everything stays good for you. I am tapering my pred and also on 4 lialda plus nightly salofalk. lets hope we both have success. Hope the cold is only a minor hiccup. Make sure you look after yourself. As a mum to two boys myself we tend to pick up these little sniffles they bring back from school.
Posted 12/27/2015 2:44 PM (GMT 0)
Glad your off that nasty pred. Hate that stuff though it can be a necessary evil.

When I have that horrible sinus pressure stuff happening which usually affects my ears really bad too, I take the Mucinex you have to get behind the pharmacy counter with pseudoephedrine in it. Makes me feel a bit woozy but definitely helps my head. My ears will get infected real easily if I don't keep the pressure down. Also, a good nasal spray helps tons too.
Posted 12/27/2015 2:56 PM (GMT 0)
that is awesome news mom !

evil evil evil nasty crap - never ever again !
Posted 12/27/2015 4:03 PM (GMT 0)
Hope your cold is a short one and not a lingering one.

Sinus rinses do help as well as Sudafed if you can take it.

Keep us updated.

q
Posted 12/27/2015 4:46 PM (GMT 0)
Congratulations it's a great achievement to get off of prednisone.
Posted 12/27/2015 5:04 PM (GMT 0)
Glad you are going off the prednisone.
I don't want to be a kill joy but I want to remind you that it is normal to get joint pains for several weeks after tapering so please don't get alarmed if this happens. Obviously the joint pains are bad but pred is worse. Rmbr don't give in and take NSAIDs
Posted 12/27/2015 7:50 PM (GMT 0)
Thanks, guys!
I am most certainly going to take some real sudafed/mucinex tonight. I have been taking the children's liquid version today and it helps, but not a ton. I do tend to get everything my boys bring home from school.
Quincy, I am most definitely using my sinus rinse twice a day for now.
Did kid- I haven't taken an NSAID in three years and I don't plan to start now! I also hope that leaving off at 1 mg will help the withdrawal symptoms.
Posted 12/27/2015 7:55 PM (GMT 0)
Congratulations. I know what it's like to finally get off pred after a long course. It's triumphant... actually, after my long course, I knew that I didn't want pred to be something I was on and off over and over. The next time I needed it, I did the course, and when I got off, I went right back into a flare up. At that point, I said NO MORE PRED. I really struggled with an uncontrollable flare up after that. Resorted to surgery and now I am med free. It's crazy to wake up and not have to take any pills. For the past ten years, the first thing I did in the AM was open the drawer and pull out about 10 pills and take them. There were times I was taking about 17 a day. Now zero. It's incredible!
✚ New Topic ✚ Reply