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Ulcerative Colitis
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Posted 5/1/2016 7:14 PM (GMT 0)
Have had colitis for 31 years.It seems to have gotten to a nasty level.All loose stools except other day was formed,thought i was getting back to normal.Well there all loose again,4-5-6 times a day.It seems my rectum gets inflamed and i have bloody pieces of tissue usually only in morning.i know when i have to go cause i get small urge/pain.Im on 100 mg of 6mp-2 apriso and cortenema every night.Im 57 and wondering if removing coion at this point is best option.Interested what you all have to say.Im a contractor in New York which makes it easy to stop at fast food places if needed.Tough disease.Im seeing my Dr in few weeks,prob should schedule colonoscopy,been awhile
Posted 5/1/2016 7:56 PM (GMT 0)
At 31 years, scoping should be no more than 2 years apart because of the cancer risk, so good idea.

I also think it would be worth it to try Remicade or other biologic. You could reduce the 6mp, and add the biologic. With mild-moderate symptoms it seems hasty to look to surgery before even trying the latest meds.

good luck
Posted 5/1/2016 8:26 PM (GMT 0)
I'd get a colonoscopy to see how active your uc is, and check for colorectal cancer (our risk is elevated after 10 years). I'd ask about biologic medications: remicade, humira, simponi, or entvyio.
Posted 5/1/2016 8:51 PM (GMT 0)
My concern with other meds is how they reduce your immune system.I lost my spleen when i was younger so my immune system is already weak.Adding remicade or others might lower my immune syatem even more.I have gotten the flu,pnuemonia too many times in last 5 years.Being anti biotics are prescribe for flu even if the meds are safe for colitis its not a lot of fun and meds have put me in flare before.I have been thinking of Glenn Frye of Eagles and don't want that to be me
Posted 5/1/2016 10:19 PM (GMT 0)
remicade suppressed immune less than 6mp, so you could get a combo of low 6mp and remicade that was less suppression than now - as long as no spleen allows biologiccs

also you could entyevo w/o 6mp and have even less.

study each med and get good info. careful not to rule out something based on assumption or mis-information
Posted 5/1/2016 11:22 PM (GMT 0)
Remicade still surpasses your immune system,everything has a side effect it seems.What i see is the immneosupressants fix the auto immune issue BUT decreases our bodies fight against infection,thats not great being I'm 57 with no spleen.A serious sickness could do me in-pnuemonia etc
Posted 5/1/2016 11:35 PM (GMT 0)
I would suggest having a conversation with your GI doctor about what options would be right for you since you have some other issues going on. If you're thinking about surgery, then it's also a good idea to consult with a colorectal surgeon to get the info you need. Hopefully between that and your GI doctor you can make an informed decision. Best of luck.
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