Posted 7/20/2016 6:46 PM (GMT 0)
Hello everyone. I am new to this website but not new to Ulcerative Colitis. I am typing on this on behalf of my mom due to the language barrier. Here is a brief history and issues. Sorry for the long essay:
She was diagnosed with UC in 2001 and was hospitalized. At this time I was young and cant remember what she took for her meds but it got in control. In 2008 things went downhill and her doctor had her on remicade. This is when we re-evaluated and signed up with a new GI doctor. He hospitalized my mom due to her side affects and condition. She was diagnosed with blood clots and TB etc. Her symptoms improved over a long struggle with aggressive treatment (enemas, meds, etc). Tried multiple meds in this time such as 6MP etc.
Eventually she was only on Asacol for treatment and did very well for a number of years. Our insurance changed and asacol changed to lialda a few years ago. My mom has been on a steady dose of 4 lialda a day and that was it. Doing very well on this.
A few weeks ago she had a flare up and was prescribed hydro-cortisone enemas at night and rowasa enemas in the morning. Along with her regular Lialda dosage. She had a EGD completed at this time and was diagnosed with gastritis, esophagitis and was started on omperazole. She experienced some side effects and it was changed to zantac. However before beginning zantac they determined that she had a H. Pylori infection and started her on a combination of the following meds/antibiotcs for the infection: Patoprazole, Clarithromy, and Amoxicillin (2 each time). So shes taking four of these twice a day...14 day cycle to kill off the h.pylori i guess. Since shes taking patoprazole, they d/c the zantac order.
The flare has continued and the doctor prescribed uceris and stopped her enemas. Her insurance has not approved uceris yet so he advised to continue the enema regimen in the meantime. Her symptoms are definitely getting worse. Dealing with multiple BM's that are painful, stomach aches, and pain around the rectum area and blood in the stool. Shes back on the enemas until the uceris gets approved and the doctor also wants to start her on imuran once the uceris starts.
Just looking for some advise and support as to what meds shes on. I am just hoping to get through this 14 day cycle and hopefully things improve. The antibiotics are harsh on her. Anyone dealt with the H Pylori and UC and also any recommendations for the flare up etc?
Thanks for the help and replies. Paul.