Bizarre hospital experience

Omg!!! It just got worse!! I've been moved to the hallway!

I'm so sorry that you're feeling this way :(
I know how it feels like to be pushed down to the hall at ER.
Trust me, you will get over this but I'd recommend that you follow up with the standard treatment first to get this BIG flare under control.

I had a big flare in the past from taking an antibiotic, it got so bad to the point that I needed to get IV solumedrol.

Are you sure that Nystatin will make things better? what if your flare has just gotten worse from the antibiotic treatment?

And I just read your Candida post and my tongue is always so coated in white during a flare. I don't know your whole story but I think it's just a flare getting worse.

I really hope that you see a good GI fast. Let us know how things work out.

It's amazing what happens when one starts to cry in the hallway.

Bed shortage. They don't think I'll get the MRI today....but they're working on a bed. I've begged for nystatin or at least to talk to the GI team about how to get my biome back. They are also trying to get me probiotics.

ER /surgery team were empathetic/ understanding & incredibly supportive. If MRI is clear at least I can get home. If abscess....another surgery. Ugh.

Thanks NCOT for your response to my other post about long term flaring. I sense by how you write you're a natural story teller. I sense by the content that u understand the frustration that comes with one crisis after another.

Yes, crying works! As does losing your rag. The latter is a bit riskier but provided you are usually a calm and obliging person, losing your temper can work wonders. I don't think there's been a hospital stay where I haven't burst into tears or lost my rag at least once: it's such an overheated (sometimes literally so) and pressurised environment, with little peace and quiet to regain one's equilibrium in. Not to mention the obvious confounding factors of being in pain, on strong painkillers, or simply not being able to get a cup of tea when you want one.

I suspect your biome will bounce back when you get better. Antibiotics do blitz the gut flora, but the gut flora does also replenish itself over time. Probiotics make the process faster, but it would happen without them.

They'd better be working on a bed... But I'm sure they are. If it's early evening where I am it must be early afternoon for you. They'll find a bed for you before the end of the day; people come and go from wards all the time, including in the middle of the night. There's nothing like trying to get to sleep in a hospital bed, only to have the nurses wheel in a new patient at 3am; bonus points if they also switch on the hideous overhead fluorescent lights because they need to 'see'.

No problem; thanks :) ... You're right; I do understand the frustration of dealing with one thing after another. It gets old, very very old. You just want to feel well again (a sensation I have forgotten) and have some bloody peace of mind for a change.

Sorry you are having such a bad time of it U B Tough. yes, bizarre is the perfect description of most hospital experiences.

When I got admitted when I was so sick, when I got dx'd, for reasons I can't even remember, maybe possible blood in my urine? The doctor ordered a catheter. It was awful, nurses for some reason couldn't attach it and I was so weak and sick, not much help. I don't know why it was so hard to get the dang thing on, was it a catheter or a freak'n garden hose? So finally, the nurses ask if it's ok if a male nurse does it. I told them, at that point, I didn't care if they did it down in the frick'n front lobby of the hospital, just be done with it and then jack my IV with more pain meds.

Right after the catheter debacle, I get informed that the GI doc ordered a colonoscopy for next day, and I'll have to start drinking the prep crap soon. That was awful, on so many levels. Nothing like drinking a gallon of nasty when you are already so ill. And the fun of having a catheter, in addition to the IV. Lol, here is the best part. Kaiser hospital, where I was has a "nobody walks alone" policy, which means you have to ring for someone, every time you want to get out of bed...and the bed is rigged with an alarm that goes off, if you get out of bed on your own. I wish I was kidding about this, I'm not. I guess they've been sued but seriously? So here I am, attached to a catheter, an IV pole and drinking stuff that has essentially turned my *** into a human fire hose and I gotta ring for the f$&@ing nurse every time I have to go? ***? I had a bedside commode but I still had to ring for someone to get up, or the obnoxious bed alarm would go off. I refused to sit on a bedpan if I could get up. Ugh, still don't know how I made it through that, it was awful. By the time they wheeled my off for the colonoscopy, I was done in.

Well, just helping you pass the time with my amusing horror story. It seems we get to check our dignity at the door as soon as being admitted to an er/hospital and that sucks, being at the mercy of others. But we with this suck disease are resilient, we have to be or we would never make it. That being said, it's still scary and very much ok to get upset and be angry with ridiculous things we encounter with doctors and hospitals.

Take care and keep the faith, you'll get through.

This is horrible! No bathroom?? That's just crazy ... and so unsanitary! Once you are well you should file a complaint about that!

Now that you have a bed, I hope you can get some rest and they figure out what treatment you need in order to get you functioning again. Hopefully they are running tests to check for infection AND a yeast over growth.