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Just scheduled my next scope

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Ulcerative Colitis
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Posted 8/22/2016 6:31 PM (GMT 0)
This will be my second scope since I was diagnosed 3 years ago. It isn't until October 10, but now that it is on the books I am already starting to prep myself for all possible outcomes. Gotta love the head games we play with ourselves. At least I have the day off the day of and the day after my scope so I can be lazy and do nothing if I feel lousy afterwards.
Posted 8/22/2016 11:36 PM (GMT 0)
Good luck mom! Hope it gives a great report--those scopes are so nerve wracking. Glad you at least have time off of work to rest--the silver lining!!!
Let us know how it goes.
B
Posted 8/22/2016 11:44 PM (GMT 0)
Good luck mom!!!! Im sending you clean biopsy vibes.

I'm getting a flex sig September 21 so I know how you feel! I've been counting down since July lol.

Hugs.
Posted 8/23/2016 12:14 AM (GMT 0)
Best of luck, and having the next day off sounds like a great idea.
Posted 8/23/2016 12:15 AM (GMT 0)
Thanks guys!
Totes, how are you feeling these days?
Posted 8/23/2016 1:17 AM (GMT 0)
I wouldn't worry. If you feel okay, I am sure the scope will look good and you will move on with confidence that you're healthy :)
Posted 8/24/2016 12:08 AM (GMT 0)
I'm doing ok. Got the iud, stopped lialda and 6 mp kicked in all at same time. Plus had an infusion. Things turned around quickly. I am/most of the time in clinical remission. Having some bumps as I taper steroid enemas and nicotine patch (started patch to wean off nicotine bc the stress had me on/off smoking for a while).

May need to bump up 6 mp to 50 mg but we are waiting to see how things settle over the next couple weeks and next infusion, which will be at 6 weeks for the first time in a long time.

My blood work is great. So I'm praying the patch is healing or healed at flex sig. Getting many biopsies!! Wishing us both good scopes.

Still dealing with the mental aspect of it all. Have a hard time trusting anything with my body these days. I know it all takes time but sometimes it's emotionally exhausting. And the fear that accompanies anything out of the norm is overwhelming. Guess it's par for the course after roller coaster flaring for a year.

How are you doing? Been thinking about you and nssg. Hugs.
Posted 8/24/2016 3:21 AM (GMT 0)
That's great totes!!! Sounds like you're well on your way to good health - already there even! The mental aspect was always extremely difficult for me. Of course, I had reason to be nervous, I really didn't have much control at a certain point and it caused me to lose all confidence in myself. I couldn't trust my body at all. Try not to think that way. There are many, many people in remission who are fine for years on end, without any occurrence of symptoms for long periods. Think positive.
Posted 8/24/2016 12:08 PM (GMT 0)
Sounds like you are much better! That's so great. Glad the IUD is working out well for you.
I would say that I am about 95% better. I still have the occasional day or two of mucus and at my appointment the other day I still had some redness in my rectum, but no sign of bleeding (knock wood). I am down to 2 Lialda a day and use my sfRowasa every 2-3 days but feel pretty good. I was due for a scope in June, but my dr wanted me to wait until things were well healed before getting one. Now he wants to get a good look to see if my disease has spread beyond the sigmoid. those were not words I wanted to hear, but I am aware that 3 years is as long as we should go between full scopes
Posted 8/24/2016 5:46 PM (GMT 0)
Thanks nssg! I'm trying to stay positive. I know I need to go to therapy to help me get my head in a good place with what happened and how to deal/cope but I'm just not ready to sit down and talk about it. I guess I just need some more time.

Mom that's great to hear! I'm sure you will have great results from the scope and put your mind at ease. I too have the occasional mucus but I honestly attribute it to ibs from either stress, food or hormones. No blood is fabulous! We will both get to 100%.

Much love guys.
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