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LDN success so far. Only been on it 2 weeks but felt I had to share.

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Ulcerative Colitis
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Posted 3/6/2017 1:57 PM (GMT 0)
I did not , that I can remember. I have to go back to my lymes doctor and ask for it smile that $200 out of pocket every time I go. I'm so happy for u!! Honestly, that's all I want remission, be off pred and not be in pain.
Posted 3/6/2017 2:40 PM (GMT 0)
Many traditional GI's/MD's are worried about malpractice suits so see if you can find any medical studies (search LDN and NIH) you can print out bring them to cover their tushies. Or do what the OP did. Good luck.
Posted 3/6/2017 2:46 PM (GMT 0)
From the ulcerative colitis resources thread at the top of this page:

Once you get the script for it, you'll need to get it from a compounding pharmacy, who'll make it up for you, and ship it to you. The best compounding pharmacy in the country for LDN is Skip's Pharmacy in Boca Raton, FL. They ship all over the world - they have 20,000 patients with various conditions on LDN. That's where I get my transdermal LDN. If you contact them, they'll tell you who locally to you will prescribe it to you. You can reach them at: 800-553-7429 www.skipspharmacy.com

Please, go to www.youtube.com write: Low dose Naltrexone in the search field and you will find a pharmacist explaining where in the U.S you can buy your medicine.
Posted 3/6/2017 3:48 PM (GMT 0)
thanks IAC !
Posted 3/6/2017 4:42 PM (GMT 0)
I just sent my GI DR and nurse an email regarding this. told him I want to try it, has he heard of it, and I would feel safer if he wrote a prescription instead of going through this process online and around him. I will wait to see what he replies with.

Pretty impressive though... even if LDN was to work for me for one year with my mild symptoms, I would feel pretty grateful. Could you imagine somehow a treatment working with almost great success for your whole life with no bad effect.... ah, to dream
Posted 4/18/2017 3:57 PM (GMT 0)
UPDATE: it doesnt work anymore. No clue why. I started SCD diet super strict and that got me out of my flare. I ditched LDN, only taking 2 lialdas and i did like 2 canasas per day for a week to get out of my flare. I am finally out of it.

homemade yogurt
avocado
spinach
no sugar sunflower butter
coconut milk
sea scallops
butter
lemon juice
asparagus
salmon
tumeric wrap
swiss cheese
turkey

and 2 lialdas per day keeps my flares away so far.
Posted 4/18/2017 5:05 PM (GMT 0)

kich said...
UPDATE: it doesnt work anymore. No clue why. I started SCD diet super strict and that got me out of my flare. I ditched LDN, only taking 2 lialdas and i did like 2 canasas per day for a week to get out of my flare. I am finally out of it.

homemade yogurt
avocado
spinach
no sugar sunflower butter
coconut milk
sea scallops
butter
lemon juice
asparagus
salmon
tumeric wrap
swiss cheese
turkey

and 2 lialdas per day keeps my flares away so far.

Congratulations on stopping your flare!!! btw, how do you get sunflower butter that is SCD legal since we are unable to eat anything processed? Just curious about that one.
Posted 4/18/2017 11:36 PM (GMT 0)

Jane974 said...

kich said...
UPDATE: it doesnt work anymore. No clue why. I started SCD diet super strict and that got me out of my flare. I ditched LDN, only taking 2 lialdas and i did like 2 canasas per day for a week to get out of my flare. I am finally out of it.

homemade yogurt
avocado
spinach
no sugar sunflower butter
coconut milk
sea scallops
butter
lemon juice
asparagus
salmon
tumeric wrap
swiss cheese
turkey

and 2 lialdas per day keeps my flares away so far.

Congratulations on stopping your flare!!! btw, how do you get sunflower butter that is SCD legal since we are unable to eat anything processed? Just curious about that one.


I didn't know it was not allowed. The ingredients say only Roasted organic sunflower seeds. Seems to agree with me. I get the organic Sun Butter. I put about 3 tablespoons in my morning blended shake I have. On another note I read on a very old post here about people going into remission eating spinach and sunbutter and I had naturally been craving these food items and eating them for about a week before I read the post. Something about the natural magnesium in them that can't be found in pills.
Posted 4/19/2017 1:20 AM (GMT 0)
If the only ingredient is roasted organic sunflower seeds then it's totally SCD legal. I haven't heard of sunflower butter so I wasn't sure what it was.
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