Really want to get out of the hospital

I came in on Sunday to the ER because my abdominal pain was a lot worse, my output is only blood or bloody mucus and I keep spiking high fevers. Unfortunately nothing has changed. I'm so used to the diarrhea aspect of UC that I'm starting to get worried about the lack of output. It's got to be bad to not actually have stool coming out right? I'm just having a little blood or bloody mucus at a time. I've been on IV Solu-medrol since yesterday.

I don't feel like the doctors understand what's going on. The allegedly best around GI said he's never in his career seen someone in this much pain from UC. Especially given the mild inflammation I have. They keep trying to discourage me from using pain meds but it hurts! They also said they won't discharge me with any pain meds. From other posts it seems like pain and pain meds are pretty common for UC in the hospital, right? Do your doctors prescribe anything for pain on discharge?

Anyone have fevers during a flare? Before I came in I kept spiking 102 all of a sudden at night and I've been doing the same here. Last night Tylenol wouldn't bring it down and it actually ended up going higher after I took it to over 103. Of course that was awful and my husband is freaked out.

I was in the process of setting up the start of Entyvio before I was admitted so the GI just wants me to do that when I get out of here. Of course it may not work and even if it does it will take months. I feel like these doctors are clueless. Is there a point where if the IV steroids are going to work noticeably? I don't know if I should give it longer or not. I'm very bitter about being in the exact same place as when I came in. I'd really appreciate any advice, thank you!

Do you have c.diff? That can be really painful. Did they actually test you for c.diff? That can cause those spikes in a high fever.

I've asked to be transferred to a university/teaching hospital from my local hospital. They put me in an ambulance and transported me to a better hospital because my local hospital was not equipped to treat me. I fired my original GI who everyone said was great and actually found a better IBD GI at the University hospital and I never looked back.

I've had loads of fevers during flare-ups. When I started Remicade, I started having spiking fevers about a month after the first infusion - the highest one reached 105C. The next day I got myself to A&E and was admitted. Briefly put on IV steroids, then taken off them by my GI 'cos he thought I had gastroenteritis *rolls eyes*. Long story short, I was discharged and back in again a few days later, in an even worse state and unbearable pain. That time I was put on IV steroids and kept on them. Was in for about 9 days. They did stool tests every day, but no infection was found. An abdominal x-ray showed signs of toxic megacolon.

There's two main reasons why steroids don't work. 1) you are steroid resistant and 2) you have an infection. If it's the first one, you may be a slow responder rather than a non responder. In my case I responded to IV steroids literally overnight, but for somebody who barely responds to steroids it may take up to 3 weeks to see a response. If it's the second one, then steroids will just be masking the underlying infection; you need to be on antibiotics instead.

Are you on opioid painkillers? Opiates/opioids are notorious for bunging people up.

I hope your hospital have run repeated stool cultures. I will lose all faith in them if they haven't done at least one stool culture.

PS: You don't have to stay in hospital for 3 weeks to see if the IV steroids are going to work; you can transfer over to oral pred. The hospital will discharge you once they feel you have been sufficiently stabilised.