It sounds like you don't trust or work well with this doctor, so, I'd encourage you to get a second opinion from another gastroenterologist at another practice. If your daughter has a difficult/complex case then it might be best to go to one of the better known IBD hospitals and I'm not sure if you're near any of the various Mayo Clinic offices or the Cleveland clinic. Even if you're not near those then look for the larger more well renowned clinics. If you are near any large universities focusing on IBD, then I've heard they're quite good and tend to think more "out of the box" compared to some private IBD practices.
The mini-colonoscopy you refer to is called a flexible-sigmoidoscopy and it can view roughly half of the large intestine, from the rectum up to the splenic flexure (where the large intestine turns on the left side to go horizontally across your abdomen). Bleeding can be caused by active ulcerative colitis inflammation, Crohn's disease inflammation, hemorrhoids, diverticulitis, and other causes. Hems are close to the sphincter and easily spotted by your doctor with a flex-sig. If the bleeding is from UC then that inflammation starts in the rectum and is usually the most severe there, so a flex-sig would see it. Crohn's can cause bleeding well and that is often absent from the areas that your flex-sig would check.
If you went 9 weeks without a remicade infusion, was a infliximab serum trough concentration and antibody blood test done (offered by Prometheus Labs and Labcorps)? In layman's terms, that test looks for the minimum concentration of remicade.infliximab just prior to your next infusion, and it checks to see if your immune system has developed remicade-antibodies that make remicade less effective. As some do loose response to remicade/infliximab over time due to antibody formation. Often the dose and or frequency of infusions can be upped to regain patent response.
Is your daughter anemic? I ask as low blood iron levels can cause chronic fatigue. We're much more prone to being anemic as IBD patients than the population at large. Fatigue is often associated with ulcerative colitis even when we're not on medications. Often fatigue gets worse when we're flaring badly and gets better and goes away as we heal. Most of what I see regarding remicade and tiredness has to do with being tired during the infusion or during a 24 hour period after each infusion. Immunomodulators (Imuran or 6MP) seem to more commonly have fatigue as a reported symptom. I don't believe I've ever read anything about
remicade and chronic fatigue and I've been following this forum for years (not to say it's impossible but certainly rare).
Dizziness has many potential causes and it can be hard to track down. Does she have low blood pressure? Does the dizziness happen when she gets up quickly also known as Orthostatic Hypotension (postural hypotension)? My dear wife has this, and will get dizzy and tunnel vision and fall back down when getting up quickly out of a bed or a chair.
Pains can be from active ulcerative colitis flares, spasms (you said antispasmatics didn't work), gas, trapped stool, as well as medical problems like pancreatitis, gall stones, kidney stones, and other uterine pains. It's a dense packed area of potential pain-causers, and especially with radiating pains, can be hard to pin down. Body pains can get worse when we flare and get better and go away as we heal (especially pains from joints).
The incidence of PSC is rare among people with IBD: Only about
3% of ulcerative colitis patients (and those are individuals with extensive disease) and 1% of Crohn’s disease patients develop this condition. source
www.ccfa.org/resources/liver-disease-and-ibd.html