Update on my symptoms, thoughts?

Hi everyone. I hadn't been on in a few weeks and wanted to check in with you all.

I'm at about the 9-10 week mark of being on imuran, but only at about the five week mark of being on it for the full 150 mg dose. I've been feeling better but I'm not sure if it is because of the imuran/humira combo or because I recently added cortifoam and anucort to the mix. I'm still on pred at 30 mg a day but the doc wants me to start tapering five mgs each week since I've seen progress. I'm at about 1-2 stools when I wake up, then maybe one or two throughout the day. There's really only urgency and occasional bleeding in the mornings. None at night.

What do you all think? She's doing a specific test to look at azathioprine levels which I should get back any day.

I've still be eating a very bland diet in fear of messing up what I've got going but I would like to move forward and retake my old life back finally.

(I added a subject)

Post Edited By Moderator (iPoop) : 2/27/2017 4:48:54 PM (GMT-7)

i'm not sure that i agree with Ima regarding pred and your diet - in most cases, pred will allow you to eat almost anything you want - i think once you are off the pred, you will have a better chance of determing what foods work and which ones don't -

but i think reducing the pred at this point is premature based on your symptoms - i would hold steady for a bit till the aza is working at full strength -

I believe the doc just wanted to check aza levels just to see if they are at a therapeutic dose? I know she wants to wait until I've been on it for at least 4-5 months before we do another c scope to see where the inflammation is at.

You are right image. Docs are more sensitive to the inflammation itself, us with it seem to be more sensitive to the symptoms themselves and how they mess with us. I know I wouldn't mind the inflammation, even tho it's not good for the body, if I could just go back to the way I was!

Maybe I'll try introducing items very slowly. I feel I just need to switch up my routine because it's been the same meals over and over again for a month. I feel the body just needs a little change? Plus I know the aza usually takes at least three months and I've only been it for two, one at the full 150.

Waiting is the hardest thing to do with these drugs. Plus the great desire to be done with pred once and for all.

imagardener2 said...
soy

I don't mind your opinion. What I'm saying is if OP can't eat normal food while on pred then he/she sure can't expect be successfully eating regular food while decreasing/off pred. But I agree with with also trying after pred. is over.
That's all I meant.

guess we're saying the same thing, only i said it bass akwards

Thank you Soy. You've propelled my optimism!