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Posted 3/6/2017 5:14 PM (GMT 0)
Hey everyone, I usually see a lot of negativity in here and reddit and just want to open this post for some positive enforcements... If you have been in remission for a good length of time, lets hear about it! We are all searching for this and I think it is helpful to us all to see something positive from this condition.

Everything from minor UC and being controlled for long periods of time with minor or no meds to Severe UC that happened to be managed even to post-surgery patients who have had long success after their surgeries.
Posted 3/6/2017 5:20 PM (GMT 0)
How much negativity? You've obviously been here for such a long time to see all sides....remissions and hell experiences. They go and in hand.

This is an observational reality response. Not a good start for you to want positive (what the hell does that mean anyway?) with your opening sentence.

Get real...you're starting off perfectly. Welcome.
My suggestion is to read more threads in the forum than to expect it all in one thread.

q
Posted 3/6/2017 5:21 PM (GMT 0)
I've been in remission for a couple of years now. I took Uceris for a month alont with 6MP (still taking that), along with Lialda.
Posted 3/6/2017 5:26 PM (GMT 0)
"This is an observational reality response. Not a good start for you to want positive (what the hell does that mean anyway?) with your opening sentence.

Get real...you're starting off perfectly. Welcome.
My suggestion is to read more threads in the forum than to expect it all in one thread.

q

ive been viewing this forum for quite a while now. I usually keep to reddit. The only brightside we have is remission so im not really seeing your attacking stance. More of a great start for you in keeping me on this forum rolleyes

I have read so many threads in here and on reddit and sometimes see the remission responses but when I come to a website such as this, sometimes I question the reality of the statistics of this disease. OBVIOUSLY it is as bad as we know it is, but I think many people who are controlled well via diet and meds dont come to these forums... It is usually the people seeking advice and going through a rough patch that find themselves here.

From the CCFA website:

In a given year:
48% of people with ulcerative colitis are in remission
30% have mild disease activity
20% have moderate disease activity
1% to 2% have severe disease (1)
Seventy percent of patients who have active disease in a given year will have another episode of active disease in the following year. Only 30% of those in remission in a given year will have active disease in the following year. The longer a person with ulcerative colitis remains in remission, the less likely he or she is to experience a flare-up of the disease in the following year.

I am sure most of us have seen these statistics... but when I visit this forum, I get the feeling that like 10-15% of people are in remission when that is just not the case.

Post Edited (RaleighUC01) : 3/6/2017 10:31:02 AM (GMT-7)

Posted 3/6/2017 5:32 PM (GMT 0)
Your choice for an opening.....it's a slam.

Hey, i did welcome you....your choice to stay since you should have a well rounded view of the place.

q
Posted 3/6/2017 7:22 PM (GMT 0)
Most of those in remission don't post anymore as they are off enjoying life. The bulk of the posters here on the UC healingwell forum changes every 2-3 months. People post mostly when they're flaring and once they get things under control they disappear. Often, they return upon their next flare and start posting again. There's multiple posts a month from people who've been absent a few years and meet that scenario. We do have some check in and say hi on occassion who are living the good life in club remission.

Red_34, one of the mods, has been in remission 8 plus years. There's another mod, sherbear46, whose been 10 plus years remission so it's possible. I had a good 2.5 year remission, fell out of it and I am nearly back into the promised land of remission. It's good to know UC isn't all suffering as sometimesthat's all it feels like.

There's always negativity in these sorts of posts as there's lots of people struggling due to UC. You just have to ride with it. But if you come from reddit then you should be somewhat accustomed to negativity and crazy rants lol (i visit and post on reddit.com/R/ulcerativecolitis/, reddit.com/r/IBD/ and others on occassion as well).
Posted 3/6/2017 10:42 PM (GMT 0)
Here's my positive update:

I was in remission for 12 years (2005-2017) while on SCD diet and intermittent use of mesalamine. It wasn't all rosy though because even in remission my stomach is hypersensitive and i have severe GERD secondary to UC, but i'll take it over UC.

After my 2 month flare that started in Jan 2017, I think I'm in remission now again! yay! I'm still hesitant to say remission because it's only been two weeks without blood, mucous, urgency etc, but i'm definitely going in the right direction!

I'm starting to feel like i'm getting more of my life back after the last two months of feeling really off.
Posted 3/6/2017 11:19 PM (GMT 0)
i'm with Q - not really sure what you're trying to accomplish there raleigh - the forum is what it is - maybe there's another one out there that fits your needs better if this one doesn't -
Posted 3/7/2017 12:59 AM (GMT 0)
Let's be nice folks, i see no harm in posting some positive stories. If you don't have a positive story then don't post in this particular thread. Cheers.
Posted 3/7/2017 1:10 AM (GMT 0)
So how do you feel about the introductory line John? open forum....

q
Posted 3/7/2017 1:40 AM (GMT 0)
As a newbie, I wouldn't mind reading that there can be a happy outcome with UC. In the throes of still trying to get to a remission, it sometimes seems like the promised land that may not even exist. It can be darned depressing to be feeling so badly and then read all the other posts of every one else having problems, too, and wondering if there really is such a thing as a positive outcome with UC. Especially with the Entivyo that I was looking around for success stories, and only found a bunch of people stating it didn't work for them. I'm not upset or saying it was negative--I understand that once people are in a good place, they don't come back to post, so we only see the ones that are having symptoms and problems. Just saying I wouldn't mind reading about success stories.
Posted 3/7/2017 2:20 AM (GMT 0)
I don't understand the feigned outrage. OP just wants to hear about people doing well and living life despite their UC. By "negativity" I assume they were talking about people posting about the "negative" experiences they are going through while trying to get their UC under control, not about negative attitudes or personalities. Lighten up people.

In response to the original request, I can say that I am at the tail end of a minor flare up and am feeling like myself again. That feeling I get where I have my energy and good mood back is great. It's like being freed from captivity. Really makes me appreciate all the good things in my life.
Posted 3/7/2017 3:33 AM (GMT 0)
I had surgery a while ago, probably coming up on 2 years in the fall, and I've left UC in the rear view. It's always nice to hear that people are doing well. We used to have a thread dedicated to success stories, but over time, it became inactive - seems like people post more when they are feeling worse, when they feel well, they are out living life.
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