I was diagnosed 3 hrs ago.. what now?

DosedQT- def looking at the probiotics, I'll find the tsl3. I'm on board with the chicken/bone broth too.
Thank you again.
Totes- I'm going back to the doc tomorrow and I'll ask her about what you said for sure. Thank you.
iPoop - that's for sure. They make it so you cant even pretend to be ok for a min. Razor blades that make water hurt. Thanks for the info, I'll be reading. xx
Actually feeling a tad better today so.. fingers crossed.

That is excellent news!

I have been suffering for going on 7 days now. Just had the doctor switch me to cortifoam from canasa for a few weeks. Everything I eat causes cramping and multiple trips to the bathroom (just D). I'm so exhausted and kind if nervous. It's making things hard with work.

Currently trying to switch doctors as mine seems to think that because most people with my dx heal up and have no further issues within a few months that I should also and can't seem to handle that I'm getting worse. Very disappointed right now as he also down played my symptoms and had originally misdiagnosed me. He gives no guidance. Very unconcerned as I sit here unable to eat in terrible pain.

Hi folks. Happy 2019.
Now that I've had time to get to know my own condition, I can see how the mouth ulcers flare before the mucus begins. They're definitely related, even though my docs won't concur. I've been upped to the 4 Lialdas a day for a year. I had a flare recently and low residue foods and enemas sorted it out. Recently I've had trouble with pain, gas and loose stools and just assumed a flare but it isn't - no severe mouth ulcers and no mucus. My doc prescribed enemas and I've been home for 2 weeks wasting time. I think I have a stricture or growth/ swelling that releases quickly after sharp pain. I had a scope a year ago, and it was clear. I've noticed during this bout that my urine is very dark too. Hopefully I can get my doc's attention after the holidays.

I felt I should come back and thank you all again for your help at the start of my issues.
I hope you all are well and have been keeping a low profile during this pandemic.
I didn't last long on Lialda. I flared badly and went hard on the 40mg Pred again. They doubled the Lialda dose. Then when I came off steroids I was in a bad state again with the mouth ulcers and diarrhea and flaring. So back on 40mg Pred plus they put me on Humira. I was doing ok until I tapered off the steroids again. Back to square one. 40mg Prednisone and changed to Entyvio - and have been for six months. I think it might be working. They forgot to take me off the steroids until recently, but anyway I'm tapering off Prednisone now - I'm down to 10mg this week, so it's looking promising because usually I have mouth ulcers by now signalling that I'm going to flare up. Throughout the ups-and-downs over the last couple of years I can only be sure of one thing; the mouth ulcers are integral to UC. As goes the inside of my mouth and throat; so goes the inside of my colon. I reckon I've had barely suppressed UC for almost 4 decades, during which time mouth ulcers were a constant torment. I hardly had a day without them, and much of the time they were severe. I think smoking was suppressing the disease just enough, and when I quit - all hell broke loose. Taking the dreaded prednisone knocked out the inflammation AND the mouth ulcers. I've been totally ulcer free (when I'm not flared up) for the first time in my adult life. And now that I'm down to 10mg, I'm thinking the Entyvio has everything under control and I'll be steroid free in two weeks.
I also got into researching my ancestry and tracing my relatives. It turns out my maternal ancestry is rife with auto-immune disease. My mother has RA, my grandmother died from pernicious anemia thought to result from Autoimmune Hemolytic Anemia. I've learned that grandma's siblings and scores of cousins male and female (who I had never met) have suffered (and some still are) from RA, ALS, MS and other such afflictions. So the hereditary aspect is real for me.
That's the story for now. Stay safe people. Look after yourselves. Thank you again.

Hi there I hope entyvio works for you.

I'm 100% convinced that the mouth ulcers are linked. I have those ulcers too when I flare. Sadly not only in my mouth but other mucosa areas of the female anatomy. It is very debilitating.

After I had my colon removed, I also started having arthritis. The auto immune disease doesn't go away with your colon but just finds a different target. Thankfully meds help me at this time while my colitis couldn't be contained anymore.

Keep posting updates and I hope you'll successfully taper the pred. Don't forget to take your calcium to prevent and counter osteoporosis.