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First colonoscopy results and diagnosis

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Ulcerative Colitis
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Posted 3/10/2017 2:58 PM (GMT 0)
I finally had my colonoscopy after spending time in hospital in January due to blood loss and dehydration. Ive got the report, just wondering if anyone can shed some light as I am new to this. He couldn't go down the right side of my colon because the scope was looping and it was too painful. Apparently my colon is very bendy! The gas and air helped hut it was still painful.

The following are the report results:

Normal rectum and sigmoid, but a patch of inflammation in the splenic flexure, and area which the predsol enema couldn't reach. Normal distal transverse colon.

1. Rectum - 1 image, 2 x biopsy and placed in 4 containers

2. Proximal sigmoid colon - 2 x biopsy taken and placed in 3 containers

3. Splenic flexure - 2 images, 6 x biopsy and placed in 2 containers.
- Patchy Erythematous mucosa
- Patchy granular mucosa
- Multiple erosions with no bleeding

I watched the screen throuhout the procedure and could see the inflammation. He said there is inflammation and multiple erosions in the splenic flexure. He seems to think that the steroid enemas have stopped inflammation further down in my colon. Took biopsies and the report says diagnosis of suspected new IBD case. Not sure if ulcerative colitis or crohns but more than likely ulcerative colitis because of where it is apparently. He said the enemas I take aren't getting high enough up to heal the inflammation so don't know what happens now. They didn't give me any tablets, he was going to give me mesalazine oral talet's but because I had a reaction to the mesalazine enema before he didn't give me any. Just thought I would have been given steroid tablets or something to get rid of the inflammation in the meantime. Any advice would be much appreciated smile

Lou
Posted 3/10/2017 3:08 PM (GMT 0)
It does sound like left-sided UC that has now bee treated half-way up the left side. The biopsies (depending on whether inflammation is deep or shallow) will suggest CD or UC, but I sounds like UC.

It would be unfortunate if you were allergic to mesalamine. You should only take oral steroids for a limited time, and you can take rectal longer - but still limited. Steroids to not treat the circumstances the produce inflammation, they only treat inflammation. So shortly after tapering off the steroid, the inflammation reappears.

Unless the biopsies suggest infectious colitis, You are going to need a systemic medicine to deal with inflammation that can be taken longer-term than steroids. IF not mesalamine, then possibly 6mp, or go right to biologics.

possibly you can eat anti-inflammatory foods and supplements, find a probiotic that works for you, and identify and avoid some foods you seem to be sensitive to. IF all of this goes well, you might be able to use that as your maintenance regime and only periodically take steroids to tame flares. many people can't do this however.

good luck
Posted 3/10/2017 5:31 PM (GMT 0)
Sure, i'll translate it for you.

Splenic flexure (where the large intestine bends from your left side and then goes horizontal across your belly).
- Patchy red (Erythematous) intestinal walls ( mucosa)
- Patchy inflammed area that's grainy in texture (granular) on your intestinal walls ( mucosa)
- Multiple areas where the intestinal wall layer was slightly thinner (erosions) with no bleeding

These are all very common UC findings and nothing to worry about.
Posted 3/10/2017 8:25 PM (GMT 0)
Thanks DBwithUC and Ipoop for the translation.

I wonder if I take the mesalazine orally whether I might not have the same reaction when I took the enema. It basically caused horrendous pain and worse diarrhea.

I have started taking some supplements:

Omega3, turmeric, vit d, l glutamine, glycine and biotin. Hoping they might help at least until I get the biopsy results back and a treatment plan.

Food wise I'm sticking too yoghurt, bananas, boiled veg soup (carrots, celeriac, butternut squash etc) and fish. I've tried introducing other foods and I just end up worse so sticking to them for now.

Interestingly the Dr Who did the colonoscopy has prescribed me budenofalk foam enemas (budesonide) instead of the predsol ones I usually take. Wondering why he's changed them.... maybe they might work better?
Posted 3/10/2017 10:45 PM (GMT 0)
It's possible that you had a reaction to the sulfate within the enemas. The oral pills do not have that ingredient.
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