Inflammation again...DEVASTATED

First, hugs and Second, noooooo, that stinks. I'm super mad that the mini pill was making you sick. I get random days of nausea from it, but I can live with it.

Now the rational side can take over. Try not to panic. It could just be a readjustment period. I started to get symptoms after my father in law passed away unexpectedly this year, but I jumped on it and am now feeling pretty good. Not 100%, but confident that things are headed in the right direction.
Take the burst of pred and hopefully that will kick the inflammation in the butt. Are you still using cortenemas? If not, can you try them again, too?
You will get past this, and until you do, vent away. Hormones are the worst, I was saying that I wanted to get a complete hysterectomy just so I didn't have to do that roller coaster any more and my UC would be much happier. Sadly my doctor and midwife both disagreed.
Hang in there.

Thanks guys. The initial shock has settled and now I'm just sad and worried of course.

@mom- I'm so sorry about your father in law. I lost my gram 2/3. It's so hard. It wasn't expected or unexpected but still a shock to the system. I haven't been in cort enemas since last November. I was on them a year and a half and took me months to wean off (more of a mental thing I think). I'm not sure if I want to go on them again. I know they didn't heal anything but they may have helped it from spreading. When speaking with my gi we decided to try the burst first then possibly the enemas as the next plan of action. I'm wondering if I need a little bit longer of a burst to be honest. Like double what I'm doing 2 30 2 20 etc. But I'm trusting my gi. I was going to give it until tomorrow and then reach out before the weekend.

@nssg- I definitely am considering it. I actually saw a surgeon last week because I thought she was also an ob/gyn at U Penn. But i read her credentials wrong. A good mistake though because she was awesome. She's the chief of colorectal surgery at u Penn and does 1-2 j pouches a week. I really liked her. I had even discussed the possibility of having a third child (which I greatly want) with the possibility of needing surgery after because I will never go thru what I did after my second. Surgery is high on my list and I am ok with it. The anxiety and stress I get from this disease consumes me. I'm only 36. I don't want to live my life this way anymore.

I'm trying to give this a couple days. I caught it very early. And mom you're right it could just be a readjustment. Praying so. I've had a very rough 6 weeks. Gram passed, in hospital bc of iud, no go with pill. My body may need to settle. Thanks for the support and letting me vent. Means more than you will ever know.

Thank kulinary! I think this will be your year! Youve been through the ringer just like me.

Hormones are horrendous. By end of year I will either be having my last baby and dealing with what ever comes afterward or figuring out how to stop my period completely.

Just spoke to my gi. Going to extend burst to 12 days instead of 4. Praying this does the trick.

Surgery is something I've accepted but at the same time fear. Like nssg said there are people that still struggle afterwards. But the not knowing with uc is just as hard if not harder than the physical part.

I'm so stressed out. The what ifs. What if it gets worse. What if it's another 2 years. What if I can't get it u set control. Am I gonna lose this summer too?

Sighhhhhhhhhh. I'm scared. I'm tired.

Old hat- yes that's very true. I don't want to miss anymore time. But I also don't want this disease to take away any more from me. I want a third baby desperately. Yes I got first symptoms in first. Rough second. But I wasn't on remicade then only 2 lialda a day. My body went into almost immediate remission when I started remicade while pregnant. My pregnant body seems to love remicade. But who knows. And I fear that too. I do know I would have a third and if I had one issue after I would get surgery. I even discussed that with the colorectal surgeon.

My gi also feels I could have a very smooth pregnancy. But who knooooows!!!!! No one.

My husband wants me to be ok. He's worried about my health and the baby's. We both feel the same there. But we also both look at it like no one can tell me it will be bad again. Do we forego another baby because something "could" happen. Granted I'm very aware something has...twice.

Rock...hard place. Stupid disease.

I was desperate to have a child but unfortunately when I went t in for a "clean up" to help with fertility the damage was so extensive they had to take everything. It was then my doctor realized how much damage endometriosis had done to my colon. It literally fused my ovaries To my rectum, pelvis and colon. So I know the desperation you must feel.

Could they consider doing a hysterectomy after you deliver? I went for a second surgery to get some left over ovary and woke from surgery instantly feeling better. From that day on I have yet to have loose stool, blood or urgency. That was October and still going strong!

Good luck!

Thanks mom. Many hugs. I'm trying to keep it day by day. Not overwhelm myself even more with the what ifs. I have definitely weighed all the pros cons goods bads and uglies with trying for a third baby and you put it right it's a hard one. I've wanted a third since I had my second. He will be 2 on the 28th. Ahhhhhh. Toooo fast.

Kk - I'm sure I can ask about options once I'm already open. I will need a 3rd c section. I know they can tie my tubes but as far as I understand that doesn't affect hormones. May I ask you what happens hormonally with a hysterectomy? I've also discussed an ablation but again unsure this affects hormones. And I'm so sorry to hear about how badly the endometriosis treated your body.

Nssg- I agree with everything you said. I would never continue with these ups and downs. I can't physically or psychologically. I pray to god I don't flare into the summer. I wouldn't be able to handle it. I hope this resolves as my hormones settle but I'm only going to know with time. The surgeon did mention if I want a third to do that first then get the j pouch. Good call on asking for post patients. I may be reaching out to you via phone to discuss and thank you for offering that.

Post Edited (TotesMagotes) : 3/16/2017 6:10:21 PM (GMT-6)

Thanks kk. I appreciate you sharing that with me. Yes I've been in therapy since last fall. Have been bouncing trying to find the right person that can help me with what I'm dealing with. I start with a new woman next week that specializes in anxiety disorders and ptsd. I'm hoping this person can help me make sense of things.

i hope it resolves too - so you don't have to think about any of it for a long time. i agree, definitely consider having the 3rd before surgery. People have babies afterwards, but it can be problematic i guess. My surgeon said they took all the precautions to ensure I'd be OK to have kids, but I've never wanted children, so it wasn't much of a consideration for me. My OB said everything looks great, but that doesn't mean it would happen, nor does it mean that I would be OK to go through it. I am sure pregnancy has impact on the function - at the same time, some people do it and they are perfectly fine. I hope you get better quickly, and get pregnant, than stay healthy forever. That would be nice! Seriously, if you want to talk, shoot me an email. I will answer any questions, crazy as they may be. Surgery is no picnic, that's for sure, but sometimes it's the only option & the only one with a guarantee. I try to always give both sides when people ask me. I've been a referral for my surgeon & I try to stay middle of the line. I can't say it's all great, no one wants to go through any of it, but I am happy I did.