New to the group

My name is Lacey. I was diagnosed With UC when I was 14. I remember being hospitalized when first diagnosed and put on medication but I don't think I took it very long and then my UC just seemed to disappear. I'm now 35 and these past 2 years have been the worst. Flair up after flair up, Prednisone, enemas, suppositories and worst of all I have crap my pants at least once a day for the past week. My GI started me on Humira 6 weeks ago on top of the Asacal but I just kept feeling worse. Went in yesterday for a flexible sigmoidoscopy and I've gotten worse. I'm at a loss and I'm scared. I have a beautiful 2 year old daughter and it's just us. Im exhausted all the time. Anything I eat upsets my stomach and now I can't leave my house cuz I don't want to crap myself in public, again. Any advise would be appreciated. Thanks

I have been doing a gluten free diet since February but it doesn't seem to be helping. I honestly don't know much about any of this so any kind of suggestions or recommendations would be nice.

I believe we have all been there with the crapping our pants. I cant stand the feeling of a sudden bathroom trip and not being able to find a bathroom. I started laughing to myself and saying well that was crapty lol. Last time I did it i just said to myself its going to be a crappy day. Seemed to make me laugh for a second. This disease is a very unforgiving one. All we can do is keep moving forward. If you dwell on it, it will keep you down. I know first hand on how depressing it can get as we all know. I wish you the very nest and if anyone ever just needs to vent any of you can text me, email me, call me and vent away.

You could try also cutting out dairy and sugar for awhile to see if that helps. Add foods back one at a time. When were flaring our guts can be more sensitive/easily irritated by foods that normally don't bother us. Try some probiotics too. Most ppl recommend vsl#3

Notsosicklygirl what trade offs are you referring to as far as the surgery. With the pouch can you go back to eating normally. I'm about to that point and just saying screw it.

Thank you, everyone. I never thought I would ever be able to make anyone really understand what I go through on a daily basis but you guys know. You actually already know, you get it. I'm crying right now. That's how alone I have been through all of this. Thank you guys so much. You'll never know how much your words have meant.

Hang in there! I'm a little older than you, but you've had UC longer than I have. I was great for YEARS and am now in month #8 of a flare we can't control with prednisone. Same - went in for flex sig last week and it was not good. Very scary to be out of control of your body, I get it!

Make sure you are able to really communicate with your GI, get another opinion (I did and got a different direction - now it's my choice between Imuran and Humira???). At this point, I am trying several supplement / herbal approaches as it's a last ditch: curcumin, a slippery elm mixture from local herbalist, and glutamine first thing in the morning. Anything to try and calm down that colon.

It is such a long road but just remember that it won't last forever, there will be a fix (whatever that is) and you can only control what you can control. We've all been there, literally going days without eating to get through a day or two of work or travel. And we've all had accidents. Being prepared does give you a sense of control - and it's not the end of the world. Sending you good thoughts!!!