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do you still ache in remission?

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Ulcerative Colitis
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Posted 8/4/2017 5:46 PM (GMT 0)
I "think" I've been in remission for over 3 months now. There haven't been any major symptoms and have had zero bleeding. However there are still some days when I ache but it's almost always connected to something I ate, bread, dairy and spicy foods mostly. The aching is minimal and the urgency is nowhere near what it used to be. It's usually in the mornings that I experience aching and have urgency to purge the bowls but I'm normal for the rest of the day. Some days there will be light aching throughout the day but it's nothing like what I've had before.

Wondering if anyone else is in the same boat. People often mistake symptoms with flaring so it could be that I'm experiencing something else, ie, food sensitivity.

Post Edited (eekseel) : 8/4/2017 1:56:46 PM (GMT-6)

Posted 8/4/2017 10:04 PM (GMT 0)
I'm not certain, but this could still be a sign of untreated inflammation, as "light aching throughout the day" isn't a good sign. However, I'm sure you will get more input from others. What Meds are you taking at the moment?
Posted 8/5/2017 4:56 AM (GMT 0)
Aching where...in your rectum? Sounds like a flare that I would experience.

q
Posted 8/5/2017 6:09 AM (GMT 0)
Eekseel,

My GI declared me I clinical remission in January based on a colonoscopy. I continued to have abdominal pain and urgency. He told me some UC patients reach remission but continue to have these symptoms. He prescribed mesalamine suppositories which not resolve my symptoms. Based on my condition he said he would not recommend any additional therapy.

I consulted another GI who said my symptoms might be low level proctitis. He prescribed additional medications: mercaptopurine aka 6-MP (immunomodulator), and nortriptyline, an antidepressant and nerve pain medication that has been used for IBS in low dosages.

A few weeks in, it seems to help although I also made some diet changes around the same time.

Like you my abdominal pain and urgency are generally worse in the morning. I have never correlated it to anything eaten in the previous 24-48 hours.
Posted 8/5/2017 11:18 AM (GMT 0)
Hmmm.....yes, it seems I am in clinical (but not histological) remission. I have no symptoms, but on the scope I had a week ago there was low level inflammation found in rectum and part of sigmoid.

After a BM I absolutely feel something. Not an ache per say, but a burning sensation. It's very light and not really bothersome (unless I think about it too much).

I have also had some ab cramping I think *might be* a form of gas. That comes and goes....

I have decided that what is described as 'remission' varies depending on whom you ask. This was an interesting article and explained a lot to me. Maybe it'll help you, as well....

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4014050/
Posted 8/5/2017 5:45 PM (GMT 0)
MK...your symptoms as I have read of late don't match remission. You have improved...yes. your constipation does follow the healing, but still flaring.

q
Posted 8/6/2017 12:49 AM (GMT 0)
I've been in remission for over a year. Solid symptomatic and histolic remission yet I still have body aches. My doctor attributed it to remicade but I had these aches before I began remicade. I personally believe it's just the nature of my autoimmune disease. Much like lupus and arthritis. I can live with the aches vs a flare.
Posted 8/6/2017 12:10 PM (GMT 0)

quincy said...
MK...your symptoms as I have read of late don't match remission. You have improved...yes. your constipation does follow the healing, but still flaring.

q

Yes, unfortunately I agree......I am looking forward to a more scientific view when the biopsy reports come back. My follow up is in two weeks or so. It's still really nice after seeing mucus/and or blood on a daily basis for 19+ months to see a formed BROWN log in there !
Posted 8/9/2017 10:36 AM (GMT 0)
I had what I like to call "healing pain". It took a while for it to go away. My body needed to get used to the healing of the inflammation and I think it also needed to get used to the new scarring. Also after a flare it usually takes me months to regain my general energy. Just because you're out of the flare doesn't mean your body is ok right away.

Other than that I think it could indeed be food sensitivity. I'd suggest a food diary to find the causes and connections.
Posted 8/9/2017 11:10 AM (GMT 0)
Do you still ache in remission? Nope.

Although pains especially from joints do occur to about 20 percent of UC patients. It's joint inflammation known as arthritis and can occur at any age.
Posted 8/9/2017 2:55 PM (GMT 0)
So eekseel....do you come back after you have started a thread?
It's like calling someone and hanging up after saying hi.

q
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