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Pathology report.....does this sound like remission?

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Ulcerative Colitis
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Posted 8/11/2017 6:01 PM (GMT 0)
I just picked up my report and there are a few things I wonder about. This is the final diagnosis:

A. Colon, random mucosal biopsies :
Benign colonic mucosa with mild to moderate edema and no diagnostic histopathologic abnormality.
Negative for active colitis; no cryptitis or crypt abscess seen
Crypt architecture essentially within normal limits.
Negative for plasmacytosis.
No well-formed granulomata seen.
Negative for dysplasia.

B. rectosigmoid biopsy :
Colonic mucosa with mild edema, focal mild crypt architectural distortion, increased plasma cells in
the lamina propria and scattered morphologically benign lymphoid aggregates, focally with germinal . center formation and mild eosinophilia---please see comment.
Negative for acticve colitis. No well formed granulomata seen. Negative for dysplasia.

COMMENTS:
B. The features are compatible with quiescent inflammatory bowel disease. clinical correlation is suggested.


So, based on this report.......does it sound like remission all the way around? I am thinking quiescent means "quiet"?

I am 3 weeks symptom free today and feeling pretty good. The only symptom that is lingering is butt burn after a BM.

I am really thinking all of these things I've been doing put together are the magic I've been patiently waiting for for 20 months. Thanks for any thoughts you can offer. these terms are foreign to me.
Posted 8/11/2017 8:04 PM (GMT 0)
Negative for active colitis is basically remission, so yeah, it does. 'Quiescent' means inactive or dormant - so you have had active IBD in the past in your rectum and sigmoid, but it's currently inactive.

Congratulations are in order, I guess!
Posted 8/11/2017 11:59 PM (GMT 0)
Sounds like a remission to me.

There's a bit of edema or redness that could be from the prep.

There's a dew immune cells around but don't appear to be causing inflammation.

Inactive/quiescent is good!
Posted 8/12/2017 12:52 AM (GMT 0)
That's awesome, thanks you guys. I was wondering about the edema --I have never had that written on the two reports I have seen in the past. And the immune cells.

I am really happy, but I have to be honest.....my butt has never hurt the way it has today (and part of yesterday). So strange on the timing.
Posted 8/12/2017 2:53 AM (GMT 0)
Your butt how and where...meaning anus?

Looks like all is doing well. 👌👍✊👏

What did your doc suggest to do med-wise?
q
Posted 8/12/2017 11:55 AM (GMT 0)
@quincy,

I go see her this week on Thursday. I just picked up my new rx of Pentasa and the bottle actually says to take 2 pills 4 times a day (previously I had been taking only twice). I'll ask her about that......if she suggests I stop the enemas, I am going to see if I can at least use a maintenance dose of every other night or so.

I figured out the butt burn (I think). It wasn't my anus, but my entire rectum and it was on FIRE all day long. The day or two prior it was a slightly noticeable situation, but yesterday was a whole other level.

I think it's the psyllium seed I added? I actually got that to replace the benefiber I'd been using. I read here that it was great nutrition for the 'good guys' in my gut. I guess the wheat dextrin was too, should have stuck with that.

But yes, over all a great report and I am thrilled......I have been giving this my ALL. I have been super self-disciplined and studying every single angle of this I could think of. And I know with this disease there is also a little bit of 'luck' factored in too. I am grateful for that.
Posted 8/12/2017 12:00 PM (GMT 0)
Edema is a fancy word for swelling. But like iPoop said, it could just be a temporary reaction to the prep - it is pretty irritating to the colon. The fact that there was no sign of tissue damage (from inflammation, either past or present) is very good.

Not sure about the butt burn. Obvious question is horribly obvious, but you haven't been eating anything spicy?
Posted 8/12/2017 1:09 PM (GMT 0)
@NCOT , no I am avoiding anything spicy or otherwise offensive. I really think it's the psyllium seed powder. Maybe that was just more 'bulk' than I've been used to? I did have 3 'stout' BM's yesterday. I am going to go back to the benefiber for now......
Posted 8/12/2017 4:33 PM (GMT 0)
You've made lots of changes over the past few weeks. The slight swelling in the rectum definitely can be from the prep, but a constant burning isn't normal since your scope was weeks ago.

Its not necessary to take pentasa 4x daily, it seems it might be reversed as in 4 pills x2 daily?

The enemas have to be tapered...l.so it will be a process. If she says drop them, it would be disappointing and will set you up for flaring again.

As per NCOT's surgery post.....Regarding rolling eyes and me or others never answering your posts or you being ignored....you best have a good explanation for that. I dont have 29,000 plus posts by just reading.

q
Posted 8/12/2017 5:25 PM (GMT 0)
@quincy
Haha, good catch. But I said that you DID answer ;-)

I sometimes forget that the nature of a forum will either cause a plethora of posts or a slim margin and the topic at hand needs to be considered. I belong to some insanely active forums and I talk a lot.....that doesn't fit with every scene.

I checked the bottle and it says 2 pills by mouth 4 times a day......hopefully that isn't the new "maintenance approach". They are really liberal with meds, so I think I could ask for the enemas and they'd be fine. This Pentasa has 5 refills on it even.

I am not ready to give the enemas up yet.....I haven't been symptom free very long and I am still nervous. I think the butt pain is that I am ingesting too much fiber. I am slowing that down. I tend to get over confident and I am not going to screw this up.

Thanks for those 29,000 posts......you have a tons of good karma out there !
Posted 8/12/2017 6:57 PM (GMT 0)
Karma isnt my thing, however this is a great forum or I wouldn't still be here.
Must be how the post was written. Yeah, expectations of immediate replies.....depends on timing.

Take your fibre with meals, and there always is a limit subjectively.

I dont understand ...change that to strongly disagree with.... how a doc would have you on a pentasa regimen of 4x daily. It's not nesessary because of how the med works. People tend to skip meds with that schedule. They can be taken 2x daily.

Let us know about your discussion with the doc.

q
Posted 8/12/2017 8:52 PM (GMT 0)
I will definitely let you know how it goes Thursday. It could just be an dosage error? but since I am only on 2 pills twice a day now and things are pretty good, I don't want to go UP with them !

Thanks againsmile
Posted 8/12/2017 11:05 PM (GMT 0)
So Happy for you and your remission! Congrats!
Posted 8/13/2017 11:35 AM (GMT 0)

FlowersGal said...
So Happy for you and your remission! Congrats!

Thanks Flowersgirl, it was a long time coming this time around. I am walking on eggshells, lol ......organic ones wink

Just kidding but I am definitely not doing what I did the first time and going right back to a bunch of bad habits. I have a new respect for this situation, that's for sure.

Edit: not that I think 'bad habits' cause my UC, I actually don't. But because good habits can foster a better environment for my GI system.....
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