The jpouch life of eat poop eat poop eat poop etc is exhausting

I'm very down at the moment. I'm sick and tired of this cycle. I take 6 loperamide every day and that won't even slow down the diarrhea cycle I'm stuck in. I go to the bathroom like 2 hours after I eat. I realize some people have it a lot worse but I don't feel like keeping up with it some days. Same with the drinking. Before surgery I could go half a day without drinking much. If I go half a day without drinking now I'm in bad shape. It's all very tiring. I can't afford to lose more weight since I'm 116 pounds. Just one day of not eating will put me down a couple of pounds. They never tell you about this before you have surgery, not that I'd go back to the way it was before with UC. I would never. It's just not an easy life.

Have you had your pouch looked at? Have you tried antibiotics?

I have pouchitis and mine pouch will act the same way as yours unless I treat it with medications. Mine responds really well to medications.

I'm fed up of it too.

I don't actually have a j-pouch, 'cos Crohn's, so I'm left with my rectum. Was it better than pre-surgery? Yes. Does it still absolutely suck? Yes.

You'll not find me putting a good gloss on things.

I am sorry you're struggling. I think a lot of people go shortly after eating, but no one eats that often that they would be going all the time if they went 2 hours after eating. I usually eat a few times a day and eat some snacks in addition. I go more some days and less others. Some people eat fiber to help. I agree with Keith, you should go get checked out. I can definitely go without drinking fluids for quite a while, but it's really not healthy for anyone to do that. I try to stay hydrated. I never complain about having lost weight. Much better at 115 than how I was on prednisone, I actually love being petite.

What Meds have you prescribed for pouchitis? Have you done a combination of antibiotics like Augmentine and Cipro for 21 days?

Are you taking probiotics?

Have you been checked for a stricture?

Did you have any improvements when you were on Cipro?

I’d try antibiotics again and see if it fixes your issues. If it does then I’d continue a combination of 2 antibiotics for 21 days to see if you can knock it out.

If your tired then ask for b-12 shots. Because of the surgery you won’t absorb as much b-12. I have a script for every 2 weeks, it makes a difference with my energy levels.

Maybe I'll just try more cipro. I had a bad night where I woke 3 times to go. Something isn't quite right. I love bananas too

Getting up in the night, for me, is usually related to the time I eat and the quantity of food I consume. If I eat a lighter dinner a little earlier, it can help immensely. I am a very light sleeper overall, which doesn't help at all. I get up often, always have. If the wind blows the wrong way it wakes me.

The antibiotic is probably worth a try & a specialist with experience in pouchitis is an excellent suggestion. Perhaps there is something rx that would help. I've heard people mention tincture of opium... Have you tried adding fiber?

@RISEagainst - For whatever it's worth, I couldn't have agreed more with your last few replies to worrywort87! I'm posting it here, because the thread is locked now and HW doesn't have a PM system. So this is the only place I can tell you. I'll let the thread get back on track now.