Entyvio headaches

I’m having brutal headaches on Entyvio. All frontal and on top of my head. Had 2 loading doses so far. The worst of the headaches happened the last 3 days before second loading dose. That would be 2 weeks. Felt like shooting myself in the head. Nothing over the counter touched the pain. My regular GP wants to do a cat scan of my head. I think that’s a little much. Others have said drink lots of fluids. Did that !

Just called Entyvio. That is a side effect. Drink plenty of fluids. I am seeing my GP on Friday. Don’t have one now. They premeditated with medrol and Benadryl. We shall see when that wears off.

For me, the best thing for headaches is the thing we can't have, NASIDs. I've tried a bunch of tripthans and they have worked in varying degrees, but it's different for everyone, and the process of trying them is pretty time consuming. You should see if you can get in to see a headache specialist. I am sure there is something out there that will work for you & they will usually get you some samples so you can test. The other options might be an antidepressant, if you're not opposed to it, those were miracles for my migraines - but mine were always hormonal - and I suffer from depression so it was easier for me to accept taking a daily preventative.

Not sure what type of headache I’m having. I know it’s a side effect from Entyvio. I was thinking of talking to my psychiatrist on Monday. I’m still having some clenching of my jaw at times. That’s with taking some Meds. In the past I’ve had cluster type of headaches.
Going for acupuncture next Tuesday. I’ve had success with that. Headaches are the worst.

Tried that calmag when I tried to come off of Clonazepam. It only made it worse. Nearly had a full breakdown. Between that and UC it was a nightmare. I think this UC and anxiety thing goes hand in hand. Entyvio is just the icing on the cake. I can handle being tired and achy joints. The headaches have to go.

your welcome...

Hi faithmac. I'm on entyvio also--since march. I'm having the same type of headache. Ive had migraines for years but these are different. Not one-sided and throbbing, but across my forehead and top of head. They've gotten even more frequent. I had a head xray that showed a thickening of mysinus wall that they called sinusitis. Imitrex will work for a while, usually until night or the next day but then the headache came back. One day I finally tried a allergy pill that was a decongestant and it worked. Now those aren't working so well. So I take a lot of imitrex. I'm so glad to not be having UC symptoms that I don't want to stop entyvio. I have an appt with a neurologist that specializes in headaches, but not until April :-(((

Its weird. I'll have the headaches daily for a while then the go away. I do still react to atmospheric pressure so its really difficult sometimes to determine if I should try the decongestant or the imitrex. Sucks, but I still feel UCsymtoms were worse because there was no relief from those, and I do find at lkeast temporary relief from imitrex or decongestants.

flowerGirl, I get a lot of info when I joined Entyvio Warriors on Facebook
They really only discuss Entyvio. Something to think about if you haven’t already joined.

I think flowerGirl you need to join Facebook. It’s a closed group. Nothing of it goes on Facebook . You ask to be invited. Of course they let you.all posts come to your Facebook messages. No one else sees them. Most people have their real names though. Doesn’t bother me. Some even take pics of them getting infusions. That’s not me. Lots of inf though. Worth trying. Let me know if you decide to try it. Just curious of what you think.
Faith

Have fun at Disney! I live an hour away and hardly ever go . Only when family comes in . That can give you a headache. Thanks Imatrex did help. Going to ask for more.