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dizziness/nausea on Lialda

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Posted 1/31/2018 10:04 PM (GMT 0)
Does anyone ever experience periods of dizziness, coupled with slightly blurry vision and nausea? There is a little bit of pain in my forehead. Ever since I started Lialda at the end of December and got my diagnosis, I have had a day here and there feeling like this. It's day 3 on this latest bout, where the other times were just for a day. It feels almost like the migraines I sometimes get, but I always get those the week before my period, and none of these have been at the right time, and I haven't had those in months. Those also respond to Excedrin, and these do not.


I'm wondering if it could be Lialda or if it is some sort of deficiency? I no longer have D, but I still have 3-4 BMs most days. I try to drink a lot of water throughout the day to prevent dehydration, and I try my hardest to eat a balanced diet, with as much fruit, veg, protein as I can that fit within the low-fiber diet the nutritionist put me on while my body heals from this flare. I lost a lot of work days in 2017 going through test after test and feeling like crap, so I really just want to figure this out so I don't spent 2018 the same way sad
Posted 2/1/2018 2:57 PM (GMT 0)
Good luck figuring it out, although I would not get my hopes up, especially if you are reliant on your medications to maintain remission and avoid allergic reactions. I always wonder how other forum members are able to say so definitively that they cannot tolerate mesalamine. You could always try going off all medication for a short period and see how things go, but there are obvious risks involved. You could also try reducing lialda to 2.4g daily, as some recent studies actually show the lower dosage to be more effective in mild/moderate disease, then monitor from there. Maybe your symptoms will improve.

I deal with similar issues and have had no luck finding a cause. The natural ebbs and flows of UC and whatever this other issue is make it too difficult to figure out. There is no guidance on how long you would need to discontinue Lialda before things improve...days, weeks, months, years?? A few weeks ago, I took canasa for a couple days on top of Lialda and experienced nausea, fatigue, and extreme brain fog where I could not put together a sentence at times because I would lose my train of thought. I'd also walk up and down the stairs several times trying to remember the purpose of going up the stairs in the first place. I took a 4 hour nap one day as well. Unfortunately, this tells me nothing because I don't know if it was the UC or the meds causing the problems.
Posted 2/1/2018 3:33 PM (GMT 0)
i agree that it can be challenging trying to figure all this BS out - but really, what options do you have -

either you rely on a. your doc and his assenal of meds, b. sheer luck, or c, your own methods - me, i think they all play a part, but if the first 2 fail, then you're back to number 3 -

so chuck, why do you not think the canasa was the culprit ? or do you think it was in cahoots with the UC ?

only one way to know = try the experiment again - but avoid any stairs smilewinkgrin
Posted 2/1/2018 4:01 PM (GMT 0)
LOL, I think it may have been the canasa, but I was taking the canasa because my UC was starting to act up a bit so.....???? Chicken or egg?? I need to pick a few days where I have nothing going on in my life and have no UC symptoms and give it another go. I can say pretty definitively that canasa causes ear problems for me but not sure if the other symptoms are related.

If my brain fog gets bad enough, maybe i'll get one of those electric stair chairs so I can jot down notes on my leisurely ride up smile Either that or just accept the sweet leg gainzzz from all the stair workouts.

I'll report back.
Posted 2/1/2018 8:53 PM (GMT 0)
The nausea, headache, blurry vision and dizziness got so bad I went to my GP yesterday. She gave me Imitrex and Zofran injections, and I felt a lot better for about 7 hours, and then I started feeling this way again, which tells me it's not a migraine. She doesn't think I am dehydrated or have a vitamin deficiency, because I didn't experience these symptoms for the three months I had relentless D. She sent a message to my GI suggesting he switch me off of Lialda, and if that does not solve the problem, we will look closely at other possibilities.

On another note, I accidentally ate wheat last night, and it is doing a nice job of pissing off my colon today.
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