HealingWell
Search Close Search
☰

What do docs do for UC related joint pain?

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 4/5/2018 10:22 PM (GMT 0)
My GI always asks if I have joint pain when I see her. Never have before but I have been getting more and more pains, especially in my knees. If it is related to UC, what is the course of action?
Posted 4/5/2018 10:56 PM (GMT 0)
Does the joint pain correlate with your uc inflammation levels (joints are worse when flaring and fine when in remission)? Some types of joint pain do and others do not.

www.crohnscolitisfoundation.org/resources/arthritis.html

You can switch from lialda to sulfasalazine which treats uc and joint pain.

You could use a COX2-inhibitor like celebrex for the pain.
Posted 4/5/2018 11:12 PM (GMT 0)
Thanks John. The joint pain is active now and I'm not flaring.
Posted 4/6/2018 2:04 AM (GMT 0)
so far, my doctors have done absolutely nothing because my bloodwork and xrays are normal. i just suffer every day and don't know what to do or what other doctor to see.
Posted 4/6/2018 1:20 PM (GMT 0)

Bacon Girl said...
so far, my doctors have done absolutely nothing because my bloodwork and xrays are normal. i just suffer every day and don't know what to do or what other doctor to see.


have you tried the 30 watermelon per day diet (seedless recommended of course)- heard it does wonders for extra-curricular pains-in-the-asses smilewinkgrin

sorry J, didn't realize you were still dealing with that sh!t sad

geez !
Posted 4/6/2018 2:39 PM (GMT 0)
I have had the same issue. My GI has a rheumatologist he works with. Have you seen a rheumatologist yet?

I am taking 1000 mg of turmeric (+peperin) daily along with 1000 mg of omega 3.

We lowered the amounts from 2000 mg daily because at my infusion, when they removed the needle from my port, my Internalist and infectious disease doctor noticed that I was bleeding from the entry area too long. It was not pouring out just seeping... Turmeric and Omega3 are blood thinners. My blood tests performed that day confirmed their thinking. I was at 2000 mg for 6 months, 1000 mg for last 3. We are going to raise the Turmeric to 1500 daily and lower the Omega to 500....see how that works.

It has helped with the knee pain. Not perfect but it helps.

I hope you find something that helps you!.
Posted 4/6/2018 2:39 PM (GMT 0)
So, I'm going through kind of the same thing. Doctors have always told me that the joint pain coincides with flares, but that really hasn't been my experience. I've been to Rheumatologists, I've been to Neurologists, the whole nine yards and they can't seem to trace it back to anything. I've NEVER had pains in my joints like this until I was diagnosed with UC.

They put me on Gabapentin (Neurontin) and Celebrex. Both of these medications have some pretty bad side effects and I felt like they weren't helping me enough for me to even want to tolerate the side effects. I stopped taking them both, and began using CBD oil.

As a side note, my joint pain always disappears within 10 minutes of my Entyvio infusions. LOL.
Posted 4/7/2018 2:28 PM (GMT 0)
I've been to my GP and a neurologist. I am currently taking cymbalta for neuropathy but have thought about switching to gabapentin. Both are used for chronic pain.

I haven't bothered with a rheumatologist because the neurologist ran a bunch of blood work which showed nothing. I don't know what else a rheumy would do beyond what has already been done. I've been through a ton of testing recently. I may consider switching to sulfalazine.

Bacon you should try a pain clinic.
✚ New Topic ✚ Reply