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Scope shows remission but the slightest food can trigger pain and blood almost instantly

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Ulcerative Colitis
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Posted 4/21/2018 3:37 AM (GMT 0)
Hi all. I have been battling with pain and bloody stools for about six years now. I was disgnosed with UC but have had some strange patterns of triggers and symptoms. I also had h pylori but am now negative. I wanted to know if anyone else has experienced something similar.

I just got back from Mayo and my colonscopy shows me as in remission. I was also checked by a rectal doctor and was told i have hemorroids and a Fissure. I have been on humira for a year and im on a topical compound for the fissure.

What’s so frustrating is that if i eat nothing but plain meat and extremely low carb/low sugar/low starch veggies like broccoli and cabbage, i can get through the day with minial issues and mostly zero blood.

But the second i so much as have a bite of an apple or even some sweet potato, i can instantly feel the area where my rectum meets my colon start to swell. Its almost as if its a trigger that causes sores to start opening up in that area. Like clockwork i will have blood in my stool two days later.

Has anyone else heard of a situation like this happening where you have a food hypersensitivity to anything that has more than the smallest amount of carbs or sugar? Of course i cannot drink alcohol or coffee either. Im just frustrated with how little I can eat while also being told Im in remission. And if im in remission why can the slightest bit of something make me bleed just two days later? I feel like i have gotten zero progress over all of these years and that the only thing that is really helping me is my insanely strict diet of plain meat with canbbage or broccoli. I always wonder if theres something different wrong going on but ive seen so many doctors who all say my colon looks fine. But these food triggers are insane.

Any thoughts are very appreciated. Thanks
Posted 4/21/2018 5:32 PM (GMT 0)
What are your current uc medications and doses? Sounds like food-intolerances are your biggest struggle. Do you take probiotics or prebiotic foods? Can you handle fermented foods (kefir, kombucha, sauerkraut)?
Posted 4/21/2018 6:12 PM (GMT 0)
A wild guess might be fructose intolerance/malabsorption.
Here is some info.
oldmike

/www.ncbi.nlm.nih.gov/pmc/articles/PMC5027396/
Posted 4/21/2018 6:30 PM (GMT 0)

iPoop said...
What are your current uc medications and doses? Sounds like food-intolerances are your biggest struggle. Do you take probiotics or prebiotic foods? Can you handle fermented foods (kefir, kombucha, sauerkraut)?

I currently take my Humira along with my probiotics.

Metagenics Ultraflora Balance
Ingredients: Microcrystalline cellulose, capsule (hydroxypropylmethylcellulose), Lactobacillus acidophilus, Bifidobacterium lactis, magnesium stearate (vegetable), and silica.
Dosage: 2 every night (15 billion each)

I have been taking them for multiple years. I've tried others which have not sat well. I've been pretty happy with them.

I've tried sauerkraut, but it seems to upset my colon a bit. I've tried to do Kombucha, but it usually has natural sugars in it which make me bleed. It's weird, after I have sugar I'll get super gassy, then a couple days later I'll have blood. Gas and pressure is always the precursor to blood.
Posted 4/21/2018 6:58 PM (GMT 0)

Old Mike said...
A wild guess might be fructose intolerance/malabsorption.
Here is some info.
oldmike

/www.ncbi.nlm.nih.gov/pmc/articles/PMC5027396/

Thanks for this. I'm going to give this supplement a shot just for the hell of it: https://www.amazon.com/gp/product/B01MYDUGHN/ref=oh_aui_detailpage_o00_s00?ie=UTF8&psc=1
Posted 4/21/2018 10:58 PM (GMT 0)
My food trigger is fiber and it's in a lot of things. In my case it is not immediate but in a couple of hours my gut says "OK everything out...NOW". I wasn't able to see that fiber was a problem until solving all the other food intolerances because it's really hard to isolate which thing it is causing the problems.

I used to be very intolerant to apples and other fruit, including fruit juices too. But after my gut healed I can eat them in low quantity with no gut payback. Yes apples have fiber too but seems less of a problem than other fiber foods. Pears are not tolerated, mulberries are fine but blueberries not so much.

I'm sorry you have had this going on for years. My diet was very, very restrictive for a long time but not 6 years. And things gradually got better. Have you tried adding resistant starch? It seems to calm my gut. My resistant starch sources are potatoes and rice pasta cooked well. Weirdly, regular rice is not good for my gut and brown rice is VERY untolerated due to fiber coating.

Hope you get some improvement. It made me sad when I could not eat so many things I enjoyed in the past. People who haven't had food intolerances have no idea what an ordeal it is.
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