Gosh, generic Entocort EC seemed to help, now no :(

This is terrible and I have been feeling terrible just when going to the bathroom (complete smelling brown liquid with lots of blood) it wasn’t like this at first when I started taking this med. some suggestions were getting the name brand drug but I can’t unless I pay $2,000 (can’t) . It’s like prednisone, seemed to help at first and then doesn’t.

My stool is brown liquid and smells so bad like diarrhea and can’t even stand to be in the bathroom at home and in public I’m so embarrassed by the smell. I think I need a c diff test to be sure it’s not that, I get these times of feeling warm to hot when sleeping too. I can actually hear like the liquid moving down the left side of my colon.

Now I’m noticing that my when I urinate it burns and real dark yellow. I’m going to stop entocort.

Anyone else have issues with side effects like this?

Linda

What do you mean besides the colon? I ache sometimes in my feet/heels really bad. I started Curamed
Curcumin to help with inflammation in the whole body. C-G-K did you do the triple antibiotic therapy as well? I tried it , didn't work.

I have done a lot of different diets, I feel I'm allergic to food it seems. LOL I will look up that diet though, I appreciate it!!!

Linda

Definitely get checked for c-diff!

Yes I did triple ABX and it cleared up the stubborn inflammation in my rectum and sigmoid. My Mayo doc was really mad about it, which is weird since he was the one to write the prescription. He has ranted about my UC possibly being Crohn's ever since despite the fact that the biopsies always indicate U.C... weird. He says ABXs never work for U.C., even though the triple ABX study in Japan was done exclusively with U.C. patients and had pretty good success. He is very old school, but exceptional with clinical stuff, so I keep him! I always see the NP for everything else now.

What I meant by inflammation outside the colon, is inflammation somewhere else in the digestive tract (small intestine, ileum, etc.).

How sure is mayo that you have Crohn's? I would get a second opinion, because if I were you I would probably be ready for a j-pouch.

The IBD AID diet is actually sustainable for me, it has only a few limits on fruits and veggies. Raw honey is the sweetener you have to use, and you just have to avoid grains (except for oats) and refined sugar.

If it's U.C. you have the option of getting a j-pouch, if it's Crohn's, you don't have that option. So, it only matters if you want to have a surgical "cure". Obviously we all want to keep our colons, but it's nice to have the option of a j-pouch as a backup plan, just in case.

Fistulas are less common with U.C. but they do happen. Usually Crohn's is diagnosed if you have inflammation outside the colon (especially the terminal ileum or small intestine).