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What are the obvious UC supplements?

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Ulcerative Colitis
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Posted 9/6/2018 6:56 PM (GMT 0)
Hey there,

I'm curious what the consensus is on the obvious UC supplements that people take. I'm figuring it's different for different people but want to be sure I hit all the most popular. I'm assuming turmeric and omegas and probiotics?

Any specifics? Any others? Let me know smile

D
Posted 9/6/2018 7:41 PM (GMT 0)
I take probiotics.
Posted 9/6/2018 8:34 PM (GMT 0)
proceed with caution on the turmeric.
Posted 9/6/2018 10:59 PM (GMT 0)
VSL 3 and e coli nissle have studies behind them. Curcumin at 3g along with oral and rectal mesalamine has also been shown effective. Google "diet vs. disease ulcerative colitis" and you'll find a good article on diet and supplements. I would also consider Paleo AIP as a supplement to your regular meds. It also has some research behind it.
Posted 9/6/2018 11:36 PM (GMT 0)
Find a fiber pill that agrees with your gut.
Posted 9/7/2018 12:53 AM (GMT 0)
First off, do not take popular supplements just because they're popular. All things to trial one at-a-time with 3-4 weeks to work, assess your result (if any) and then keep or discontinue accordingly. Many things will not work, only a few will. It'll take time and patience to figure it out. Our most prominent alternative supplement takers took years to find their solution, no two are alike without any broad repeatability.

Popular supplements are cbd oil/mmj, probiotics, fish oil, turmeric, and various diets like ibd-aid/scd. Many more are in the alternatives section of our resources sticky thread that've been popular over the years there. Gluten and dairy are frequent problem foods and most diets avoid them. Nothing is guaranteed to work, many have little or no scientific backing. Good to have a big toolbox of possible things to try. Some have had success. Cheers!
Posted 9/7/2018 3:00 AM (GMT 0)
This just in:

https://www.bbc.com/news/health-45434753
Posted 9/7/2018 3:34 AM (GMT 0)
Nothing did much for me, but the obvious ones have probably been mentioned. Probiotics, turmeric or curcurmin, fiber... there are so many others people have tried, some with "success", but their success was only something they experienced personally, and often times couldn't be repeated, nor could they guarantee that the success was from the supplement vs. something else they did, or spontaneous remission. it's a gray area, but don't give up. I feel like we see a lot more success with diet vs specific supplements. Omegas seem to cause D more than anything else, but it's all individual and you should try for yourself.

Another thing, there have been a lot of studies recently showing that many of these supplements/vitamins, not only aren't what they say, but also do not show any results. It's not a market that is well tracked. While I am not all for the system as it exists, and I am a cynic, I do see that unregulated industries, like supplements and vitamins, are purely for the profit of the brand. I worked for one once and the people had no clue about any health related issues. it was all about making the product for as cheap as possible, sourcing the items from wherever was the most profitable. They had absolutely no integrity, nor any knowledge of any illness, and even worse, no interest in the people who purchased the items, of course, none of this was clear from the packaging - but why would it be? That's capitalism.
Posted 9/7/2018 5:04 AM (GMT 0)
The best thing I could have ever done to help myself was get my genetics done through 23andme, and then plug the raw data into sites like nutrahacker which taught me about my detox genetics. There are many different sites out there that you can put the genetic info into.

Based on that info, I was able to find supplements to support my faulty detox pathways, and then my inflammation went right down. Before that, it was a wild goose chase with a lot of near misses. Once I got the genetics figured out, I realized that my body deals poorly with oxidation, so I needed to support that.

When I started taking the right stuff, I didn't need 4 weeks to know, it worked within days. I also avoided stress, oxidating foods, and even getting too much sun because injuries and sunburns cause oxidation.

I don't touch turmeric when I'm already bleeding, it just makes bleeding worse. I save turmeric for when my mucosa is further along in its healing. I also take ALA, CoQ10, grape seed extract, bacopa, silymarin (milk thistle), vitamin C, molybdenum, and magnesium. These all support detoxing and fight oxidative stress.

When I need probiotic I drink milk kefir, water kefir, or sauerkraut. I don't waste my time with commercial probiotic as they never work, except for one specific brand that I use for retention enemas overnight. I don't find that taking oral probiotics does very much.

When I'm coming off prednisone, I use pregnenolone and DHEA. Nothing works better than them for supporting my adrenal function. In fact I may use pregnenolone instead of prednisone if I start flaring again. (It's what they used before prednisone was invented and it's way safer.)
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