Posted 10/3/2018 12:32 PM (GMT 0)
Glad you've got your life back to 100% and entyvio worked well! I love success stories, where someone wins against this horrible disease and gets his/her life back.
Truth. It's a very emotional journey, and the biggest hurdle is always coming to terms with needing the next level of treatment. So you're not alone, many of us have spent sleepless nights worrying about the next thing, and biologics do tend to scare us spitless when initially thinking about them. Remicade is the only medication to give me a remission with UC, so can relate!
I do enjoy the talks with other UC and Crohn's patients at my remicade infusion. Usually all gruff veterans of IBD, and we quickly begin sharing our most embarrassing poop stories, joke around about having IBD, share tips, commiserate on flares, meds, doctors, and endoscopy. Most of all it is just awesome to have someone face-to-face who gets it, has been through the same struggles, etc.