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Ulcerative Colitis
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Posted 8/21/2007 4:46 AM (GMT 0)
Is there a family guide to help family members understand uc?
Posted 8/21/2007 5:50 AM (GMT 0)
There's nothing that I have personally been able to find.
My family has actually been very studious about the subject also, I'm fortunate in the fact that an Aunt of mine has an IBD and a good portion of my family already understands.
The best suggestion that I can give you would be printing out some information from ccfa.org highlighting the ailments. It's a great information resource.
Posted 8/21/2007 12:20 PM (GMT 0)
My GI's office usually has some decent brochures that lay out general UC information. I actually picked up one for my parents last time I was there.
Posted 8/21/2007 1:29 PM (GMT 0)
I don't know of any family guide. There really should be though. I put together an info pack for my dad years ago and my mom did all her own research. My husband has learned through asking me questions. I wish I could get him on here!!!

Any questions you or your family have are welcome here. I think this is a great place for families. I know my husband feels as though I exagerate sometimes but when he sees a thread of people complaining about the exact same thing he understands better.
Posted 8/21/2007 4:23 PM (GMT 0)
There's tons of information on the internet which can be printed out. Make sure you include some awesome pictures of a raw colon..etc just for impact.

Some just don't want to "get it" because that's the way they are.. It would then mean they'll have to actually become emotionally connected to someone's butt and suffering. Not all people want to go there.

quincy
Posted 8/21/2007 9:33 PM (GMT 0)
This may help you and your family...

http://www.amazon.com/Questions-Answers-Disease-Ulcerative-Colitis/dp/0763739677/ref=sr_1_1/103-1627232-5907820?ie=UTF8&s=books&qid=1187731754&sr=8-1

I found it to be a good book answering many questions that I had when I found out about the disease. You may wish to check it out at the local bookstore before purchasing it.

The name of the book is "100 Questions & Answers about Crohn's Disease and Ulcerative Colitis: A Lahey Clinic Guide"
Posted 8/21/2007 9:46 PM (GMT 0)
this may sound a little unorthodox, but you might want to look at some books/information on alcoholism. i have been doing some reading on the subject (my father is in recovery) and there is TONS of information on how to explain a disease to someone who doesn't consider what you have a disease (did that make sense?) i know i have trouble getting my family and friends to believe what i have is "real" and not just a weakness or being dramatic. alcoholics often have to deal with the same problems and there is so much information about alcoholics and family, you may be able to use some to help them understand UC. let me know if this is of any use to you--or what anyone else thinks about this connection. i'm very curious...
Posted 8/22/2007 2:19 PM (GMT 0)
The CCFA has some great resources that might help your family. www.ccfa.org

Sue
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