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I want to hear your experiences with Vitamin E enema or Fecal transfusion

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Ulcerative Colitis
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Posted 10/31/2007 1:30 AM (GMT 0)
Hey guys

How are you all feeling?? Me im ok.

Ive been doing more research and im very interested in the Vitamin E enema or Fecal Transfusion. I posted before in regards to this but now i want to hear from the people who actually tried it and I want to know how your feeling and if most importantly if you can eat again. Because if fecal transfusion and Vitamin E work then i guess we are being fed pharma drugs just too make some people in the pharma business very rich.

Well let me know about your experiences.

Posted 10/31/2007 2:23 AM (GMT 0)
I did the vit e enemas along with the SCD and it worked for a year and a half (no other drugs). I'm sure it would have lasted longer if I had used the enemas this last time, but I was nursing my son and held off too long and BAM, it got WAY out of control. The enemas didn't work anymore. The first time I used them I was weaning off pred and got sick again. They worked great! I really was well in 3 days! Like 100% well! I did them for a few weeks, then on and off for a few months. I went about a year without using anything after that. I really regret not using them to prevent this time b/c I'm sure I wouldn't be having to use more drugs. I just used the -ol type in an empty rowasa enema bottle. No water, and about 10-20 1000iu pills depending on how bad I felt.
Anything is worth a try to stay off drugs!

I looked into the fecal thing though and it didn't seem to really work. There was too much question on whether it could make you worse or not, and even people who had tried it with clinics had gotten worse...so I didn't go that route.
Posted 10/31/2007 4:59 AM (GMT 0)
Hey DeniseW

Thanks so much for replying. Sorry to hear that your in a flare. Well im trying to find out much as possible about the fecal transfusion and vitamin E enema.

A whole year doing great that is wonderful news. Question for you .. i know you were on the SCD diet at the time of your last Vitamin E enema but right now i believe you are using the vitamin E enema again. Are you following Sheldons diet to promote beneficial bacteria to heal your colon since i read that with the right nutrients our body can heal itself from anything.

Also for the fecal transfusion do you have any links of testimonials of people who have had that procedure. And did these people get the fecal transfusion done in Australia where the Centre for digestive disease is located??

And keep me posted as to how the vitamin E enema is going.

Take care and hope you well. 

Posted 10/31/2007 9:27 PM (GMT 0)
The vit e didn't work this time. It did help a ton (that and licorice), but didn't kick it like it did before. I think it's b/c I have pancolitis and it just got too bad too far in there. I stopped doing them when I started the remicade. I decided if I was going on the "big" drugs, I'm not going to mess with all that anymore. No special diets either. The day I stopped eating healthy (ate the worst mexican food in the world and expected an accident before I left the restaurant), I started feeling better. Go fig. Probably the small does of prednisone that did it though (even though the high hospital dose did nothing). Anyway, I went off the diet and enemas about a week and a half ago. Since I have to take the remicade forever, it seems pointless to do things to keep it all at bay you know? I digress, to answer your question though, scd has yogurt on it that is suppose to repopulate your gut. I went with scd b/c it is scientifically based and not just randomly what Sheldon felt was good to eat. But yes, I'd eat the yogurt and drink Kombucha. Honestly, I think the vit e would help to some degree no matter what you eat.
But then, any type of probiotics throw me into a flare, so what I did was minimal.

I don't have any of the links for the fecal stuff. I just did google searches on any and every wording combo I could think of. There isn't much out there on it.
Posted 11/1/2007 1:46 AM (GMT 0)
You might also want to give the pig whipworm egg (trichuris suis ova, TSO) therapy a try. It is very expensive but can work, and they are powerful imune modulators. I had tried for some time, quit after it didn't put me in remission, then flared after quitting, and now I am trying an intense barrage of the stuff at double dose and within days my flare ended. I won't know for sure if it works this time at the higher dose, until I can get very low on pred with it, but the flare's end was defintiely the TSo and not the pred (which I have been dropping, currently down to 15 mg).

Anyone who has been doing the vit E enemas- how did you manage to mix the vit E into a form in the enema that would flow? (You can't mix it into water, so what did you use, olive oil?)
Posted 11/1/2007 3:52 AM (GMT 0)
I didn't mix my vit e in anything. I used the NOW brand ending in -ol, not -yl, and it was fine. The first three I did I mixed with water, but then realized it just made things complicated and used nothing after that. Put it in a rowasa bottle, and once in a childs fleet enema bottle.
Posted 7/25/2010 10:19 PM (GMT 0)
Any update on this topic? Anybody in remission thanks to Vit E enemas?
Posted 9/10/2010 4:47 PM (GMT 0)
Bump!
Yes I would like to know if this therapy has helped anyone else.
Posted 9/11/2010 3:24 AM (GMT 0)
I have been using the vitamin e enema for a couple of years now.  I squeeze the oil out of the capsules and add right in with my hycort or I add it to my cortifoam.  When I add it to the cortifoam I add a little cortifoam into the applicator then add as many capsules as I can then add more cortifoam and it kind of all mixes together.  Add more on the applicator tip and retain for the night. It always helps to stop the bleeding.  I have mixed it with  warm water and there is oil left in the bottle but I'm sure some is leaving the bottle and entering the colon.  Its worth it to try vit e, if you read about the benefits of vitamin e it's a very powerful antioxidant and has great healing properties.  The next time you get a cut or burn try vitamin e on it and just see how fast it heals.

 I take probiotics 2x a day and I have had fewer flares since starting all this.  When I feel symptoms coming on I jump on the vit e and enemas and up the probiotics to 4x a day.  I also excersise daily and find that makes a huge difference in the way I feel.  My gut is calmer once I start excersising, I sleep better and I have more energy.

I have been in remission for over 2.5years now, with the occaisional  episode but I try to catch things as soon as I feel things going for the worse and so far it's been working.

Posted 9/11/2010 4:57 PM (GMT 0)
I tried fecal transplantation a couple of months ago using my wife as a donor, and am still doing fine. I'm not taking any meds right now and I did not use Dr. Borody's antibiotic protocol before beginning the 10 days (plus another 2 days a couple of weeks later) of fecal infusions. I do still have arthritis, though.
Posted 10/14/2017 2:30 PM (GMT 0)
I happened to read about this vitamin E thing and tried it for the first time a couple of weeks ago when my Uceris steroid prescription and Lialda both ran out and insurance wouldn't refill. I went from being mostly ok (it's been a rough couple of years) to completely fine. Big bm's in the morning and that's it, baby! Anecdotal? Placebo effect? All I know is that for the first time in years I am both meds free and totally healthy in my pooping. The lack of meds was kick started by insurance intractability, to be sure, but, hey, it's 10:30am and I just went for the first time in 24 hours. That has been my definition of uc success for years, so...
Posted 10/14/2017 6:49 PM (GMT 0)
I've tried Vitamin E for my UC, and it made my symptoms WORSE. Especially the bleeding. I do not recommend any supplements or vitamins without a doctors approval, because most have made my symptoms worse in some way or another. --->"Potential side effects of vitamin E due to high doses include unusual bleeding or bruising, nausea, headaches, and blurred vision."<--- These side effects happened to me in normal doses. You can read about this vitamin at the site below:


alzheimers.emedtv.com/vitamin-e/vitamin-e-side-effects.html

Post Edited (Handyman123) : 10/14/2017 12:56:57 PM (GMT-6)

Posted 10/14/2017 10:20 PM (GMT 0)
a. dr's have very little advice to give on supplements - best they will say is "try them" -

b. are you talking E enemas or E oral cuz those are 2 very different cats -
Posted 10/14/2017 11:54 PM (GMT 0)
I've tried vit E enema a few times and every time my bleeding got worse and from bright red my blood turned dark, did FMT under Borody for 3 months using my husband as a donor it helped with pain and reduced number of BMs but blood never went away but now I am using vit E suppositories and they help really well if rectum feels sore and inflamed
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