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HELP i need some opinons PLEASE

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Posted 10/14/2008 7:15 PM (GMT 0)
Hi, this is my first post. I will try to make it short...I had a hysterectomy a yr ago..Was 38 yrs old..Surgery was at 9 in the morning, and everything went well...AT about 5 that afternoon, I began to feel really bad..I was having trouble breathing, and my chest felt as though something was standing on it..I told the nurses, and they just said i would be fine..This continued on, and only became worst for 12 hours..I was fighting for every breath, told them it felt as though an elephant was standing on my chest...TO Please call my doctor...My blood pressure was so low, that they kept saying the machine was broken, I told them it wasn't and something was terribly wrong...I never once complained about the cut acrose my stomach or the real reason i was there...they finally called my doctor at 6 that next morning...He came in an looked white..he was my doctor for 22 yrs...He told me that I was hemmoraging internally, and lost mor ethen half the blood in my body, and had a heart attack...I could not react as i was barly able to listen...They started giving me blood..in all , i was given 7 pts..I was flown to a caridac floor to a near by heart hospital...ALL of a sudden i bacame a heart patient...I have never felt the same since..I have so much anger inside, because I told them so many times to call my doctor...I do have an attoreny, but no money can ever repace the mom my kids need...I did have an agegram s/p? done, and he said my heart and other organs went through alot but made it through because i was very healthy...Then why don't i feel better?  What can make the anger so away? ALso, the last two months, my calves , ankles and feet are swelling so bad that i can actually feel my skin strethching, pressing leaves hugh indentions....I can't even get a appointment...I do have all my medical records...My tropinion levels are unreal, and just want some opinons...thanks to anyone that relies....ALso I am happy to be alive, and now i don't take one day for granted...I pray for everyone with heart trouble...

thanks

aimee

Posted 10/14/2008 7:43 PM (GMT 0)
I'm sorry for everything you've gone through. To me it does appear to be incompetent medical care that contributed to your health problems, and I wish you well in your legal pursuits. What exactly is your heart diagnosis? Why can't you get an appointment? I've had multiple medical problems throughout my life. I underwent an emergency hysterectomy in 2003 due to hemhoraghing and required 7 units of blood as well. The doctor's were concerned that the pumping action of my heart was damaged due to the low blood flow, but thankfully that turned out not to be so. With your edema I'm not so sure you were as lucky. You need to calm down, get an appointment with a competent cardiologist to explain in detail what your diagnosis is and how to control the edema you're experiencing. I think the anger will go away with time and will be helped by knowing what your medical condition is and how you can best control your disease.

Many, many people live with heart disease ( I've lived with a congenital heart problem for 51 years !). Learning how to deal with it gives you control over your life and will take away the feelings of frustration and anger. Good luck !
Posted 10/14/2008 8:02 PM (GMT 0)
OMG thanks for a response so quick....I know i should be thankfull to be alive when people have it so much worst..And that makes me feel guilty...I am not sure about my heart, and that is what scares me.....Thanks so much...The cardiologist is so over booked , he doesn't even call back.....
Posted 10/14/2008 8:37 PM (GMT 0)
sorry i didn't answer your question..After my anegram, he said that my heart only suffered from trying to pump the little blood i had, but showed no sign of damage...Other doctors ( not Cardiologist) from like the medical panal, said from reading my vitals those 12 hours seems hard to beleive..But I do think the cardiologiest would know best....I do know why i was hemmoraging...It had nothing to do with my OBGYN or meaning anything he did...After he closed me up, they said few hours later, a blood vessel ruptured and that is where the blood came from...The nurses were fired ...The malpractice suit is almost over..but i also have so many medical bills from this that my credit is shot..
I do pray that the anger goes away...I am so afraid of hospials and doctors now, and that is not fair...It they would of listen to me i would not have went through 12 hours of that...
If you don't mind me asking why were you hemmoraging??? but so glad i have someone who can relate to that much blood loss...I literally felt my body dying slowly...I kept my 4 kids faces in my brain so that they would be the last thing i saw when i died...the bad part is the whole time, i had no idea what was going on, and didnt' know why i felt like i did..If i would of had the strenght I would of called him myself...Anyway, losing track here...just excited to talk to someone about this.....I pray that your heart disease gets better, and hoping that i can learn to deal with it like you, because i don't want this to control my thoughts......I am not a complainer, but so scared they missed something....And i really starting worrying more when my calves, and ankles started sweelings...Maybe i will try a new doctor....this one is so busy that i dont' even get a call back....thanks again, and god bless!!
aimee
Posted 10/14/2008 9:01 PM (GMT 0)
Aimee -- you're not alone. I feel for you and what you've gone through. I'm also a mom to 4 kids and now a grandma to two and I'm telling you that looking at them is what keeps me going on bad days. My hemhoraghing was due to coumadin therapy that I am on due to a mechanical aortic valve. The anti coagulant therapy caused a uterine polyp to bleed excessively. By the time I got to the hospital I had a hematocrit of 12 and needed 7 units of blood in addition to emergency surgery. I urge you to find another cardiologist if you can't get into this one quickly. Although I'm not an expert on whether your situation is dire or not, for your own peace of mind you need to be satisfied that you're getting the best care possible.

I think I've had it easier then you in the sense that I always had heart disease, it wasn't thrust upon me by some incompetent medical personnel. I pray that you get the medical answers you're looking for and that those answers bring with it some sense of peace that greater knowledge of a situation often brings.

Good luck.
Posted 10/15/2008 3:57 PM (GMT 0)
thanks, My hematocrit ws very close to yours.....Can you tell me if you had a heart attack when you lost so much blood? did it effect your kidneys??
I am sorry you have to deal with so much...Prayers going your way
thanks so much
aimee
Posted 10/15/2008 4:13 PM (GMT 0)
Thanks for the prayers Aimee -- mine to you as well. No I did not suffer a heart attack nor did I have any kidney damage. Do you have kidney damage? Is that the reason for your edema or is it heart related? Call your cardiologist office and ask to speak directly to your doctor's nurse. Tell her/him your symptoms and if they feel it is serious, they should get you in right away without waiting. When ever I have problems, my doctor's nurse gets me in within minutes to see the doctor or one of his associates. The receptionist or appointment people may not understand your situation, ask to speak to a nurse who will help you to get into the doctor sooner.

Good luck.
Posted 10/15/2008 5:40 PM (GMT 0)
I just called and was more forward, and they will see me tomorow ..:) thanks...I am not really sure about my kidneys..All i know is I have had kidney infections since the incident...which i have never had in my life..Pain in my back always, right where my kidneys are, mostly on just one side....One of the cardiologist that saw me in the hospital , told me that i was lucky to be alive., and that my kidneys and heart went through the most....That was no surprise to me, because I literally thought i was doing to die that night...I spent 2 weeks in the hospital, and my body rejected some of the blood, but that wasn't too bad, it ended up being ok...What worries me the most, is the swelling in my legs and feet...Also i wish they would of sent me to a kidney doctor to be sure...I think the not knowng much is what is tough...I think the depression comes from this:

I Have been sent to alot of different doctors, but because i have this hugh lawsuit where most of these doctors work, they don't want to have anything to do with me...There exact words, were Sorry, but i don't see patients with a lawsuit...My lawyer is furious, but in my state, they have the right to do that...Just makes me feel like i did nothing wrong, and now i can't get the help i need...I would even drop the lawsuit to be able to make sure i am ok...Also the weakness i feel is so wierd, I just turned 40, and i have always been healthy...I am 5'5" and weight 115...always eat healthy, and i just don't feel healty at all...My kids suffered alot through this, and even still, because i am too tired to do all the things i use too...And i dont' want to sound like a whiner, when i KNOW so many have worst then I....Thanks helen for listening to me,,,I am so glad i found you and this forum...
aimee
Posted 10/15/2008 7:19 PM (GMT 0)
Aimee -- no need to apologize -- when you're sick and don't understand what is happening to your body, it can be depressing.   Hang in there.   I'm glad you got an appointment tomorrow.   Hopefully the appointment will clear up exactly what is happening to you.   Keep me posted, I really do care.

It's so sad that doctors in your area won't see a patient that is involved in a law suit, although I understand they have the right to do so.   My daughter in law is an attorney and she has had doctors refuse to treat her when they find out her profession even though she just handles bankruptcies!   Is there a neighboring area that is not that far from you where you can seek medical care in the absence of qualified medical care in your area?  

Good luck with the doctor tomorrow.

 

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